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Policy & Guidance

TOLL FREE NUMBERS FOR WISCONSIN FAMILIES
WHO HAVE CHILDREN WITH SPECIAL HEALTH CARE NEEDS

Compiled by the Regional Children with Special Health Care Needs Centers - Call (800) 441-4576 for the CSHCN Center serving your area.

Wisconsin First Step - Clearing house of information for families with children who have special needs and Directory of specific disability related organizations 1-800-642-STEP(1-800-642-7837)

Family Voices - nationwide grass roots information and advocacy network of families whose children have special health care needs (www.familyvoices.org) 1-888-835-5669

The Wisconsin Child Care Resource and Referral (CCR&R) Network - a statewide organization of community-based child care resources and referral agencies including information about inclusive child care for children with special needs 1-888-713-KIDS (1-888-713-5437)

MUMS (Mothers United for Moral Support) Wisconsin based national parent network for families of children with special needs 1-877-336-5333

Birth to 3 - Wisconsin's early intervention (IDEA - Part C) program for children with special needs under age 3 1-800-642-STEP

Ombuds Program - problem solving, advocacy for Medicaid-HMO enrollees 1-800-760-0001

Wisconsin Family Ties - information & assistance for families whose children have mental, emotional, and behavioral disorders 1-800-422-7145

Respite Care Association of Wisconsin 1-877-260-9207

Wisconsin Department of Public Instruction (DPI) helpline 1-800-441-4563

W-2 Disabilities Hotline - information about food stamps and other assistance programs for W-2 eligible families caring for a household member/s with a disability 1-888-400-8455 local Madison 250-4044

WI FACETS (Family Assistance Center for Education, Training & Support ) Inc. Free information and assistance understanding special education including parent & student rights 414-374-4655 or 877-374-4677

Parent Education Project (PEP-WI) - information and assistance understanding special education, including parent and student rights 1-800-231-8382

Cleft Palate Foundation of America - 24 hour information hotline 1-800-24CLEFT

Spina Bifida Association of America Hotline (www.SBAA.org) 1-800-621-3141

ARC - advocacy for persons with cognitive disabilities; parent support groups, training, information and referral 1-800-433-5255 (Voice)1-800-855-1155 (TDD)

Wisconsin Coalition for Advocacy - protection and advocacy agency for persons with disabilities in Wisconsin 1-800-928-8778(Voice/TDD)

Wisconsin Office of the Commissioner of Insurance - insurance questions and complaints 1-800-236-8517

ABC for Health, Inc. - statewide benefits counseling and legal services for families with children who are having problems financing health care (www.saftyweb.org) 1-800-585-4222 local Madison 261-6939

Centers for Independent Living - provide information about equipment, home modification 1-800-642-STEP

National Easter Seal Society - respite camps, equipment, etc. 1-800-221-6827

WisTECH - information about adaptive aids 1-800-642-STEP

NICHCY - National Information Center for Children and Youth with Disabilities - provides free information on disabilities and disability related issues. Focus is birth to 22. (www.NICHCY.org) 1-800-695-0285


Financial and Other Resources

Medicaid (Medical Assistance, M.A., Title 19) Recipient Hotline - information about recipient eligibility and rights, covered benefits, lists of providers, problems with bills, etc. 1-800-362-3002 local Madison 221-8815

SSI Medicaid eligibility questions 1-800-888-7989

Medicaid (M.A.) Ombuds - assistance with appeals, complaints, billing problems, for MedicaidHMO enrollees) 1-800-760-0001

Healthy Start, HealthCheck 1-800-722-2295

BadgerCare - State and federally funded affordable health insurance for uninsured working families with children under 18 1-800-362-3002 local Madison 221-8815

Health Insurance Risk Sharing Plan (HIRSP) - health insurance for those with disabilities, chronic illness (children and adults) 1-800-828-4777

Wisconsin Shares - assistance with child care costs for eligible working parents with children under age 13 including parents in W-2 or like programs 1-888-713-KIDS

WIC Program -food for pregnant and nursing women, food/formula for young children 1-800-722-2295

Wisconsin Aids/HIV Drug Reimbursement Program 1-800-991-5532

Shriners Hospitals for Children, TWIN CITIES, birth to 18- medical and surgical services for children with bone, muscle and joint problems 1-888-293-2832

Shriners Hospital for Children, CHICAGO - provides all of the above AND services for craniofacial, facial, and ear deformities including orthodontia (birth to 18) 1-888-385-0161

Craniofacial Foundation of America - educational materials, family networking and some travel assistance 1-800-418-3223

Wisconsin Council for the Blind - rehabilitation information, canes, assistive devices, and advocacy 1-800-783-5213

Children's Craniofacial Association - travel costs associated with surgery for children and adults 1-800-535-3643

Allergy Network (Mothers of Asthmatics) - peak flow meters and nebulizer accessories at reduced cost 1-800-878-4403

Wisconsin Bureau for the Deaf & Hard of Hearing - information, referral, support and training for individuals deaf, hard of hearing or deafblind. 608-266-3118 TTY/Voice

Hear Now - hearing aids and cochlear implants1-800-648-HEAR

Wisconsin Lion's Foundation - hearing aids 1-877-463-6953

Miracle Ear Children's Foundation - hearing aids for school-age children 1-800-234-5422

Starkey Hearing Foundation - hearing aids 1-800-328-8602

Wisconsin Knights Templar - hearing aids 1-800-242-2307

Donated Dental Services Program (DDS) - dental services for needy, disabled, and/or elderly individuals 1-888-338-6852

Indigent Drug Programs (require physician referral) 1-800-PMA-INFO

The Magic Foundation for Children's Growth - growth disorders 1-800-3MAGIC3




Resources for Wisconsin Families, Updated July 2002 - Phone Numbers may Change Without Notice