The Waisman Center provides comprehensive clinical care and support for children with disabilities and their families. The Waisman Center Down Syndrome Clinic is a partnership with UW Health and the American Family Children's Hospital. An interdisciplinary team of professionals works together to provide clinical care of children with a diagnosis of Down syndrome.
Children and their families are seen for initial and follow-up visits to address concerns related to Down syndrome in the areas of: feeding, growth, development, communication, behavior, hearing, therapy and support services. Genetic counseling is also provided in the clinic. Individualized care is provided according to the needs of the child identified in collaboration with their parent or guardian. The guidelines will be followed from the American Academy of Pediatrics Standards in the Care of Children with Down Syndrome.
If you are interested in an appointment, please have your/your child’s primary care provider fill out a referral at uwhealth.org/referral. We will call you to schedule an appointment once we have processed the referral.
|Maria Stanley, MD
Developmental Behavioral Pediatrician
|Stephanie Carpenter, RN
|Jessica Scott Schwoerer, MD
Clinical Biochemical Geneticist
|Marcella Andrews, MPT
|Jon Douglas, AuD
|Amy Ford, MS, RD/CD
|Sharon Gartland, OTD, OTR/L
|Susan Heighway, APNP
Pediatric Nurse Practitioner
|Kayla Kristensen, CF-SLP
|Amy Lyle, MSSW
|Lindsay McCary, PhD
|Christie Turcott, MS, CGC
Family Care Coordinator
From the east—follow University Avenue through campus and then go off to the right on Campus Drive; stay in the right lane and turn right at the University Bay Drive/Farley Avenue intersection.
From the west—follow University Avenue
and turn left at the University Bay Drive/Farley Avenue intersection.
After making the turn (from either direction)... Continue straight over
the hill; the road at that point becomes Highland Avenue. The Waisman
Center is at the bottom of the hill on the left, across the street from
March 05, 2016 at
Friends of the Waisman Center Auditorium
More information coming soon.
FREE ADMISSION & PARKING • EVERYONE WELCOME • PLEASE PRE-REGISTER
For additional details call 608.263.5837 or email to email@example.com
To learn more visit: Waisman Center Day with the Experts Outreach Page
The Waisman Center is seeking adults with Down syndrome, ages 30 and above, for a research study involving an MRI and a PET scan to examine amyloid plaque in the brains of these individuals. Researcher Brad Christian, PhD, will look at the link between amyloid plaques and Down syndrome. Individuals with Down syndrome have an extra 21st chromosome, which contains the gene that makes these proteins and could lead to earlier development of Alzheimer's disease.
PI: Brad Christian, PhD
PURPOSE: To learn more about how spoken language samples can be used to measure change over time in the spoken language, problem solving, and behavior of individuals with genetic syndromes. In the future it is possible that measures of spoken language production may be useful as one way to learn whether different medications can help individuals with genetic syndromes to learn and use language more effectively.
WHO: We are looking for boys and girls aged 6 to 23 years with Down Syndrome.
WHAT: This is a longitudinal study which means we will ask you and your child to visit the Waisman Center three times over a 2-year time period. At each visit, we will collect a language sample in three different ways; a conversation, looking at a picture book, and participating in a series of interactive activities with an examiner. Additionally, we will ask you, the parent/guardian to fill out some questionnaires and participate in an interview about your child’s everyday living skills. You will be paid $50 for each visit as well as reimbursed for any traveling costs.
Please contact our study coordinator, Susen Schroeder, for information at 608.263.5145 or firstname.lastname@example.org
Principal Investigator: Audra Sterling, PhD
The Vocal Tract Development Laboratory at the Waisman Center, directed by Dr. Houri K. Vorperian, is currently recruiting individuals of all ages to participate in a speech and sound reflection study. The lab is interested in characterizing the development of the mouth and throat structures in typically developing individuals and individuals with Down syndrome. The purpose of the lab's research is to understand how changes in the anatomy of the mouth and throat affect the production of speech sounds.
This current study includes a hearing screening and having your voice recorded while repeating sounds, words, and sentences. Eligible participants may also be asked to breathe into a tube. The tube makes clicking noises to measure the inside of the mouth and throat. Participants with recent head or neck imaging (CT or MRI scans) are highly desired, but those without imaging may still
You can view this study's consent form as well as an informational flyer here: http://www.waisman.wisc.edu/vocal/ongoing-studies.html
Please contact the Vocal Tract Lab at 608.263.5610 or email email@example.com if you have any questions or would like to schedule a visit.
PI: Houri K. Vorperian, PhD
Waisman Center is seeking participants with Down syndrome for a clinical research study that is currently enrolling to test the safety and the effects of an experimental medication on learning, memory and activities of daily living in children with Down syndrome.
We are seeking children to take part in the clinical research trial who:
The study involves coming to the UW Madison hospital and/or Waisman Center for 10 visits over about 9 months. These visits may last from 1 hour to approximately 2 to 6 hours. During these visits, participants and their parents or caregivers will be answering questions about the participant. Children who participate will also have tests of learning and memory, a medical examination, tests to assess brain function and heart function, and will have blood samples taken. Families who participate will be compensated for taking part in this study.
For more information about the study, please contact study coordinator Connie Trantow at 608-265-7814 or firstname.lastname@example.org
PI: Maria Stanley, MD/sub-I: Lindsay McCary, PhD