Health and IEP
Success in the classroom, in the community, and on the job requires that young people are healthy. It is therefore imperative that young people with health issues have the knowledge and skills needed to maintain and sustain their health and wellness. To ensure this, health related goals need to be included in the Individualized Education Plan (IEP).
Over the past several years, staff from the regional Children and Youth with Special Health Care Needs (CYSHCN) Centers in the state of Wisconsin have received an increased number of questions from parents and providers regarding medical issues and the Individualized Education Plan (IEP). In an effort to address some of these questions, three PowerPoint presentations were developed along with companion handouts. CYSHCN regional staff hope that this cd-rom will provide a core knowledge base on this very important topic.
For additional information and/or resources, please contact your regional Children and Youth with Special Health Care Needs Center by visiting CYSHCN Resources
The primary purposes of this cd-rom are:
- To collect materials on this topic in one location
- To empower professionals with the content to present on this topic
- To nurture an on-going dialogue around health and the IEP among youth, families, health providers and school teams.
How to Use
This cd-rom includes a variety of information about Health and the IEP including:
- Three PowerPoint presentations detailing how and why health related matters can be included in the IEP
- Handout packets that correspond to each PowerPoint
- Resource handouts on a variety of topics related to health and school. You are invited to use and tailor this information to your audience, although we ask that original authorship and credit be respected.
For more information on this topic, please contact a regional Children and Youth with Special Health Care Needs Center.
We would like to thank the work group members who helped identify
review materials for this project:
- Wynne Cook, Western Regional CYSHCN Center
- Julia Stavran, Northern Regional CYSHCN Center
- Sheila Knuth, Northeastern Regional CYSHCN Center
- Mary Jean Green, Southeastern Regional CYSHCN Center
- Liz Hecht, Southern Regional CYSHCN Center and Waisman Center
- Beth Swedeen, Southern Regional CYSHCN Center and Waisman Center
- Amy Whitehead, Statewide CYSHCN Coordinator
also to the GHC Medical Home Team: Ann T. Behrmann, MD,
Group Health Cooperative and Janice Cooney, PA-C, UW Family Practice
for their contributions to the PowerPoint entitled "Partnerships with Healthcare
Providers and Schools."
thanks to Debbie Kaufman and Jane Imholte, Madison school
and Linda Caldart-Olson and Rachel Gallagher, School Nursing Health Services
Consultants with the Department of Public Instruction for reviewing the PowerPoint
entitled "Health Conditions and the IEP Process."
Funding is provided by a Maternal and Child Health Title V
Maternal and Child Health Bureau, Health Resources and Service Administration,
US Department of Health and Human Services.
A. Power Points
- Embedding Health Outcomes in the IEP CYSHCN (MSPowerPoint)
- Health and the IEP (MS PowerPoint)
- Partnerships with Healthcare Providers and Schools (MS PowerPoint)
Each packet of handouts correspond to the numbered power points
although feel free to choose handouts most relevant to your topic. When available,
the document's url is also listed.
D. Additional Resources
Additional resources are included on this topic.
Packet 1 (related to ppt #1: Embedding Health Outcomes in the IEP CYSHCN)
- You Are an Advocate for Your Child with Special Health Care
Needs! Developed by
Family Voices, Inc.
Website: You are an Advocate
- Provision of Educationally-Related Services for Children and
Chronic Diseases and Disabling Conditions. Committee on Children with Disabilities.
February 2000. Pediatrics. Vol. 105 No. 2, American Academy of Pediatrics.
Website: Provision of Educationally-Related Services for Children and Adolescents With Chronic Diseases and Disabling Conditions
- Diabetes at School: What a Child's Health Care Team
Needs to Know About
Federal Disability Law (Commentary). Kaufman, Francine K. 2002. Clinical Diabetes: Vol. 20 No. 2.
Website: Clinical Diabetes Journal
- Safe Delivery of Care for Children with Diabetes in Schools.
Adopted January 12, 2005,
National Association of School Nurses: Consensus Statement.
PDF Document: Safe Delivery of Care for Children with Diabetes
- Transition Developmental Checklist. Developed by Kentucky
Children with Special Health Care Needs.
PDF Document: Transition Developmental Checklist
- What's A Medical Home? American Academy of Pediatrics,
Initiatives for Children with Special Health Care Needs.
Website:Medical Home Info
PDF Document: What's A Medical Home
- Care Plan. September 15, 2005. Developed by a Parent of a
Youth with Complex
Medical Needs and the Southern Regional Children and Youth with Special Health Care Needs Center
PDF Document: Care Plan by a Parent
- Draft GHC Electronic Medical Home Care Plan. November 2005.
PDF Document: GHC Medical Care Plan.
- Individual Health Summary for Student with Traumatic Brain
Injury. Developed by
Wisconsin Department of Public Instruction.
PDF Document: Individual Health Summary for Student with Traumatic Brain Injury
Packet 2 (related to ppt #2: Health and the IEP)
Issues Related to Students with Special Health Care Needs
in the School.
Developed by Linda Caldart Olson and Judy O'Cane, Wisconsin Department of Public Instruction.
Health Summary for Student with Traumatic Brain Injury.
by Wisconsin Department of Public Instruction.
- Madison Metropolitan School District Special Needs information Form. 3/2000.
DHFS/DPH/43011 Documentation of Instruction from Registered
Unlicensed School Personnel.
Sample 504 Plan Document. Transition Digest: October 20,
2002, John Reiss,
- Students with Chronic Illness: Guidance for Families, Schools,
- Tools and Information for School Nurses, Parents/Guardians
Staff--Frequently Asked Questions. P 50-59. From Children with Diabetes – A
Resource Guide for Wisconsin Schools and Families PPH43063 12/02. From manual online: Childrens Guide
Packet 3 (related to ppt #3: Partnerships with Healthcare Providers and Schools)
Health Care Checklist: A resource to help youth/young
adults with special
health care needs make a successful transition to adult living that includes their health
and health care. March 2006. Pennsylvania Department of Health.
- Parent Brief: What Does Health Have to do with Transition?
Everything! Ceci Shapland,
May 2006. National Center on Secondary Education and Transition and PACER Center.
- Guidelines for the Administration of Medication in School.
Pediatrics. Vol. 112 No. 3
September 2003, American Academy of Pediatrics, Committee on School Health.
What You Need at Your Doctor Visit (Tip Sheet). Developed
by Patti Hackett,
Glen Gallivan, KASA and Faye Manaster. Healthy & Ready To Work National Center.
- One Page Portable Medical Summary (Sample). Healthy & Ready To Work National Center.
Healthy For Youth & Teachers (Tip Sheet). Developed
by Patti Hackett and
Glen Gallivan. Healthy & Ready To Work National Center.
at School Involves You: School Meetings, Your Role in
Making Them Work.
Healthy & Ready To Work National Center.
- Care of Children with Diabetes in School and Day Care Settings
Diabetes Care, Vol. 25 Supplement 1, January 2002. American Diabetes Association.
to Adult Care Developmental Activities Checklist (Pilot
Form). 01/02 Shriners
Hospital for Children.
Conditions and the IEP Process. Developed by the Southern
Children and Youth with Special Health Care Needs Center 2006.
Health Information and Advocacy Center, Inc.( Fact Sheet).
2000. Health Information
& Advocacy Center, a project of Parent Advocacy Coalition for Educational Rights (PACER) Center.
Services, Community-Based Therapies and School-Based Services.
of Wisconsin Medicaid Program School-Based Service Handbook, PHC 1423 April 2005.
- Wisconsin Medicaid School-Based Services Fact Sheet. State
Department of Health and Family Services. PHC 1148 12/04.
page 58 of: http://dhfs.wisconsin.gov/Medicaid2/handbooks/sbs/sbs.pdf
Standards & Quality Indicators: Transition Toolkit
for Systems Improvement.
National Alliance for Secondary Education and Transition.
- Transition to Adult Health Care: A Training Guide in Two Parts.
Developed by Debra
Gillman with consultant Ben Schlicht. Waisman Center and Healthy and Ready.
January 2005. http://www.waisman.wisc.edu/cedd/wrc/Adult_Teen.pdf