Children and Youth with Special Health Care Needs

Health and IEP

Overview

Success in the classroom, in the community, and on the job requires that young people are healthy. It is therefore imperative that young people with health issues have the knowledge and skills needed to maintain and sustain their health and wellness. To ensure this, health related goals need to be included in the Individualized Education Plan (IEP).

Background

Over the past several years, staff from the regional Children and Youth with Special Health Care Needs (CYSHCN) Centers in the state of Wisconsin have received an increased number of questions from parents and providers regarding medical issues and the Individualized Education Plan (IEP). In an effort to address some of these questions, three PowerPoint presentations were developed along with companion handouts. CYSHCN regional staff hope that this cd-rom will provide a core knowledge base on this very important topic.

For additional information and/or resources, please contact your regional Children and Youth with Special Health Care Needs Center by visiting CYSHCN Resources

Purpose

The primary purposes of this cd-rom are:

  • To collect materials on this topic in one location
  • To empower professionals with the content to present on this topic
  • To nurture an on-going dialogue around health and the IEP among youth, families, health providers and school teams.

How to Use

This cd-rom includes a variety of information about Health and the IEP including:

  • Three PowerPoint presentations detailing how and why health related matters can be included in the IEP
  • Handout packets that correspond to each PowerPoint
  • Resource handouts on a variety of topics related to health and school. You are invited to use and tailor this information to your audience, although we ask that original authorship and credit be respected.

For more information on this topic, please contact a regional Children and Youth with Special Health Care Needs Center.

Acknowledgements

We would like to thank the work group members who helped identify and review materials for this project:

  • Wynne Cook, Western Regional CYSHCN Center
  • Julia Stavran, Northern Regional CYSHCN Center
  • Sheila Knuth, Northeastern Regional CYSHCN Center
  • Mary Jean Green, Southeastern Regional CYSHCN Center
  • Liz Hecht, Southern Regional CYSHCN Center and Waisman Center
  • Beth Swedeen, Southern Regional CYSHCN Center and Waisman Center
  • Amy Whitehead, Statewide CYSHCN Coordinator

Thanks also to the GHC Medical Home Team: Ann T. Behrmann, MD,
Group Health Cooperative and Janice Cooney, PA-C, UW Family Practice
for their contributions to the PowerPoint entitled "Partnerships with Healthcare
Providers and Schools."

Additional thanks to Debbie Kaufman and Jane Imholte, Madison school nurses,
and Linda Caldart-Olson and Rachel Gallagher, School Nursing Health Services
Consultants with the Department of Public Instruction for reviewing the PowerPoint
entitled "Health Conditions and the IEP Process."

Funding

Funding is provided by a Maternal and Child Health Title V Service Grant,
Maternal and Child Health Bureau, Health Resources and Service Administration,
US Department of Health and Human Services.

Contents

A. Power Points

  1. Embedding Health Outcomes in the IEP CYSHCN (MSPowerPoint)
  2. Health and the IEP (MS PowerPoint)
  3. Partnerships with Healthcare Providers and Schools (MS PowerPoint)

B. Curriculum

  1. Transition to Adult Health Care: A Training Guide in Two Parts (PDF Document)

C. Packets

Each packet of handouts correspond to the numbered power points above,
although feel free to choose handouts most relevant to your topic. When available,
the document's url is also listed.

D. Additional Resources

Additional resources are included on this topic.

Packet 1 (related to ppt #1: Embedding Health Outcomes in the IEP CYSHCN)

  1. You Are an Advocate for Your Child with Special Health Care Needs! Developed by
    Family Voices, Inc.
    Website: You are an Advocate
  2. Provision of Educationally-Related Services for Children and Adolescents with
    Chronic Diseases and Disabling Conditions. Committee on Children with Disabilities.
    February 2000. Pediatrics. Vol. 105 No. 2, American Academy of Pediatrics.
    Website: Provision of Educationally-Related Services for Children and Adolescents With Chronic Diseases and Disabling Conditions
  3. Diabetes at School: What a Child's Health Care Team Needs to Know About
    Federal Disability Law (Commentary). Kaufman, Francine K. 2002. Clinical Diabetes: Vol. 20 No. 2.
    Website: Clinical Diabetes Journal
  4. Safe Delivery of Care for Children with Diabetes in Schools. Adopted January 12, 2005,
    National Association of School Nurses: Consensus Statement.
    PDF Document: Safe Delivery of Care for Children with Diabetes
  5. Transition Developmental Checklist. Developed by Kentucky Commission for
    Children with Special Health Care Needs.
    PDF Document: Transition Developmental Checklist
  6. What's A Medical Home? American Academy of Pediatrics, Medical Home
    Initiatives for Children with Special Health Care Needs.
    Website:Medical Home Info
    PDF Document: What's A Medical Home
  7. Care Plan. September 15, 2005. Developed by a Parent of a Youth with Complex
    Medical Needs and the Southern Regional Children and Youth with Special Health Care Needs Center
    PDF Document: Care Plan by a Parent
  8. Draft GHC Electronic Medical Home Care Plan. November 2005.
    PDF Document: GHC Medical Care Plan.
  9. Individual Health Summary for Student with Traumatic Brain Injury. Developed by
    Wisconsin Department of Public Instruction.
    PDF Document: Individual Health Summary for Student with Traumatic Brain Injury

Packet 2 (related to ppt #2: Health and the IEP)

  1. Issues Related to Students with Special Health Care Needs in the School.
    Developed by Linda Caldart Olson and Judy O'Cane, Wisconsin Department of Public Instruction.
  2. Individual Health Summary for Student with Traumatic Brain Injury. Developed
    by Wisconsin Department of Public Instruction.
  3. Madison Metropolitan School District Special Needs information Form. 3/2000.
  4. DHFS/DPH/43011 Documentation of Instruction from Registered Nurse to
    Unlicensed School Personnel
    .
  5. Sample 504 Plan Document. Transition Digest: October 20, 2002, John Reiss,
    list moderator.
  6. Students with Chronic Illness: Guidance for Families, Schools, and Students.
    Family Guide
  7. Tools and Information for School Nurses, Parents/Guardians and School
    Staff--Frequently Asked Questions. P 50-59. From Children with Diabetes A
    Resource Guide for Wisconsin Schools and Families PPH43063 12/02. From manual online: Childrens Guide

Packet 3 (related to ppt #3: Partnerships with Healthcare Providers and Schools)

  1. Transition Health Care Checklist: A resource to help youth/young adults with special
    health care needs make a successful transition to adult living that includes their health
    and health care. March 2006. Pennsylvania Department of Health.
  2. Parent Brief: What Does Health Have to do with Transition? Everything! Ceci Shapland,
    May 2006. National Center on Secondary Education and Transition and PACER Center.
    Publications
  3. Guidelines for the Administration of Medication in School. Pediatrics. Vol. 112 No. 3
    September 2003, American Academy of Pediatrics, Committee on School Health.
    http://aappolicy.aappublications.org/cgi/reprint/pediatrics;112/3/697.pdf
  4. Getting What You Need at Your Doctor Visit (Tip Sheet). Developed by Patti Hackett,
    Glen Gallivan, KASA and Faye Manaster. Healthy & Ready To Work National Center.
  5. One Page Portable Medical Summary (Sample). Healthy & Ready To Work National Center.
  6. Staying Healthy For Youth & Teachers (Tip Sheet). Developed by Patti Hackett and
    Glen Gallivan. Healthy & Ready To Work National Center.
  7. Success at School Involves You: School Meetings, Your Role in Making Them Work.
    Healthy & Ready To Work National Center.
  8. Care of Children with Diabetes in School and Day Care Settings (Position Statement).
    Diabetes Care, Vol. 25 Supplement 1, January 2002. American Diabetes Association.
    http://care.diabetesjournals.org/cgi/content/full/26/suppl_1/s131
  9. Transition to Adult Care Developmental Activities Checklist (Pilot Form). 01/02 Shriners
    Hospital for Children.

Miscellaneous Resources

  1. Health Conditions and the IEP Process. Developed by the Southern Regional
    Children and Youth with Special Health Care Needs Center 2006.
  2. Health Information and Advocacy Center, Inc.( Fact Sheet). 2000. Health Information
    & Advocacy Center, a project of Parent Advocacy Coalition for Educational Rights (PACER) Center.
  3. Covered Services, Community-Based Therapies and School-Based Services. State
    of Wisconsin Medicaid Program School-Based Service Handbook, PHC 1423 April 2005.
  4. Wisconsin Medicaid School-Based Services Fact Sheet. State of Wisconsin
    Department of Health and Family Services. PHC 1148 12/04.
    page 58 of: http://dhfs.wisconsin.gov/Medicaid2/handbooks/sbs/sbs.pdf
  5. National Standards & Quality Indicators: Transition Toolkit for Systems Improvement.
    National Alliance for Secondary Education and Transition.
  6. Transition to Adult Health Care: A Training Guide in Two Parts. Developed by Debra
    Gillman with consultant Ben Schlicht. Waisman Center and Healthy and Ready.
    January 2005. http://www.waisman.wisc.edu/cedd/wrc/Adult_Teen.pdf

Last modified Wednesday, February 29th, 2012