Waisman Center Day with the Experts

Girl with Down syndrome

Down Syndrome

March 05, 2016 at
Friends of the Waisman Center Auditorium

Event Details

Saturday, March 5, 2016
9:00 a.m. - 12:15 p.m.
(Complimentary coffee & bagels at 8:30 a.m.)
Where: Friends of the Waisman Center Auditorium
First Floor Annex
Waisman Center, UW-Madison
1500 Highland Ave
Madison, WI 53705
Learn about advances in research and clinical services and hear from a panel of experts—individuals with Down syndrome and family members.
Registration: Click here to register.
Download: 2016 Schedule (pdf)
Note: Capacity is limited, please register to attend the event at the Waisman Center.
For additional details call 608.263.5837 or email palumbo@waisman.wisc.edu
Hosted in partnership with the Madison Area Down Syndrome Society
Sponsored by the Friends of the Waisman Center

To learn more about the series visit: Waisman Center Day with the Experts Outreach Page.
Note: All Day with the Experts presentations are recorded and archived.

Schedule & Program

9:00-9:15am Welcome and Introduction to the Waisman Center
Albee Messing, VMD, PhD
Director, Waisman Center
Professor of Neuropathology
9:15-9:45 am Navigating the Journey: The Transition to Adulthood
Maria Stanley, MD, Clinical Associate Professor of Pediatrics, Director, Waisman Center Down Syndrome Clinic
Erin Thomson, LCSW, Social Worker, Waisman Center Down Syndrome Clinic
Every adolescent and their parent(s) thinks about what their future will hold. Planning for and with young adults with Down syndrome should include a picture of their whole life – what needs to happen and what they would like to happen. In this talk we will consider the various aspects of transition that should be covered as well as special considerations related to Down syndrome.
9:45-10:15 am Biomarkers for Alzheimer’s Disease in Down Syndrome
Brad Christian, PhD, Associate Professor, Medical Physics, Waisman Center Investigator
Individuals with Down syndrome have been largely neglected in therapeutic and biomarker studies of Alzheimer’s disease, despite being at an increased risk for developing this disease. We are undertaking a large study to follow the longitudinal progression of Alzheimer’s disease in adults with Down syndrome using clinical, cognitive, imaging and genetic and biochemical biomarkers. This information is not only necessary to deepen our understanding of Alzheimer’s disease in Down syndrome, but may also offer useful information in the design of treatment trials to slow or prevent Alzheimer’s disease in Down syndrome.
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10:30-11:00 am Enabling a Full Life: Participation at Home and in the Community
Sharon Gartland, OTD, OTR/L, Occupational Therapist, Waisman Center Down Syndrome Clinic
Individuals with Down syndrome have the potential and right to participate fully in meaningful life activities, just like all of us. This can include basic self care such as getting dressed or enjoying mealtimes, all the way to joining in the church choir or local art class. This presentation will discuss how to identify and set participation goals for home and community life, analyze what are limiting factors and learn how to take full advantage of supports available.
11:00-11:30 am Question and answer session with a panel of clinicians
11:30 am - 12:15 pm
A panel of experts that includes individuals with Down syndrome and family members