Autism

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Family Reports:

Unanticipated Lives (2000) Aging Families of Adults with Mental Retardation: The Impact of Lifelong Caregiving
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Summary of Year 1 Findings (1989)
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A Book of Quotes from Families (1992)
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Siblings Speak Out (1993)
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A Book of Quotes from Fathers (1995)
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Publications:

Esbensen, A.J., Seltzer, M.M., & Abbeduto, L. (in press).  Family well-being in Down syndrome and fragile X syndrome.  In J. E. Roberts, R. Chapman, & S. Warren (Eds.), Speech and language development and intervention in Down syndrome and fragile X syndrome. Baltimore, MD: Brookes.

Esbensen AJ, Seltzer MM, Greenberg JS (2007) Factors predicting mortality in midlife adults with and without Down syndrome living with family. Journal of Intellectual Disability Research 51 (12) 1039–1050
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Esbensen, A. J., Seltzer, M.M., & Greenberg, J.S. (2006). Depressive symptoms of adults with mild to moderate intellectual disability and their relation to maternal well-being. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 229-237.
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Esbensen, A.J., Seltzer, M.M., Greenberg, J.S., & Benson, B.A. (2005).  Psychometric evaluation of a self-report measure of depression for individuals with mental retardation. American Journal of Mental Retardation, 110, 469-481.
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Esbensen AJ, Seltzer MM, Krauss MW. Abstract Stability and change in health, functional abilities, and behavior problems among adults with and without down syndrome. American Journal of Mental Retardation. 2008 Jul;113(4):263-77
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Essex, E.L., Seltzer, M.M., & Krauss, M.W. (2001). Fathers as caregivers for adult children with mental retardation. In B. J. Kramer & E. H. Thompson (Eds.), Men as caregivers: Theory, research, and service implications. New York: Springer.

Essex, E.L., Seltzer, M.M., & Krauss, M.W. (1999).  Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation.  American Journal on Mental Retardation, 104, 545-563.
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Essex, E.L., Seltzer, M.M., & Krauss, M.W. (1997).  Residential transitions of adults with mental retardation: Predictors of waiting list use and placement.  American Journal on Mental Retardation, 101, 613-629.
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Freedman, R.I., Griffiths, D., Krauss, M.W., & Seltzer, M.M. (1999).  Patterns of respite use by aging parents of adults with mental retardation.  Mental Retardation, 37, 93-103.
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Freedman, R. I., Krauss, M.W., & Seltzer, M.M. (1997).  Aging parents’ residential plans for adult children with mental retardation. Mental Retardation, 35, 114-123.
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Gordon, R.M., Seltzer, M.M., & Krauss, M.W. (1997).  The aftermath of parental death:  Changes in the context and quality of life.  In R. L. Schalock (Ed.), Quality of life: Its application to persons with disabilities.  Washington, DC: American Association on Mental Retardation.

Greenberg, J., Seltzer, M.M., & Greenley, J.R. (1993). Aging parents of adults with disabilities: The gratifications and frustrations of later-life caregiving. The Gerontologist, 33, 542-550.
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Greenberg, J., Seltzer, M.M., Krauss, M.W. & Kim, H.W. (1997).  The differential effects of social support on the psychological well-being of aging mothers caring for adult children with disabilities.  Family Relations, 46, 383-394.
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Greenberg, J.S., Seltzer, M.M., Orsmond, G.I., & Krauss, M.W. (1999). Siblings of adults with mental illness or mental retardation: Current involvement and the expectation of future caregiving. Psychiatric Services, 50, 1214-1219.
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Hong, J., Seltzer, M.M., & Krauss, M.W. (2001). Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation. Family Relations, 50, 154-163.
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Kim, H., Greenberg, J.S., Seltzer, M.M., & Krauss, M.W. (2003).  The role of coping in maintaining the psychological well-being of mothers of adults with mental retardation and mental illness.  Journal of Intellectual Disability Research, 47, 313-327.
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Kling, K.C., Seltzer, M.M., & Ryff, C.D. (1997).  Distinctive late life challenges: Implications for coping and well-being.  Psychology and Aging, 12, 288-295.
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Krauss, M.W., & Seltzer, M.M. (1997).  Life course perspectives on mental retardation research:  The case of family caregiving.  In J.A. Burack, R.M. Hodapp, & E. Zigler (Eds.), Handbook on mental retardation and development.  NY:  Cambridge University Press.

Krauss, M.W., & Seltzer, M.M. (1995).  Long-term caring: Family experience over the life course.  In D. Rosenthal & L. Nadel (Eds.), Down syndrome: Living and learning in the community.  New York: John Wiley.

Krauss, M.W., & Seltzer, M.M. (1994).  Taking stock: Expected gains from a lifespan perspective on mental retardation.  In M.M. Seltzer, M.W. Krauss, & M.P. Janicki (Eds).  Life course perspectives on adulthood and aging.  Washington, DC: American Association on Mental Retardation.

Krauss, M.W., & Seltzer, M.M. (1993).  Coping strategies among older mothers of adults with retardation:  A life span developmental perspective.  In A.P. Turnbull, J.M. Patterson, S.K. Behr, D.L. Murphy, J.G. Marquis, & M.J. Blue-Banning (Eds.), Cognitive coping, families, and disability: Participatory research in action.  Baltimore: Paul H. Brookes.

Krauss, M.W., & Seltzer, M.M. (1993).  Current well-being and future plans of older caregiving mothers. Irish Journal of Psychology, 14, 47-64.
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Krauss, M.W., Seltzer, M.M., & Goodman, S. J. (1992).  Social support networks of adults with retardation who live at home.  American Journal on Mental Retardation, 96, 432-441.
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Krauss, M.W., Seltzer, M.M., Gordon, R., & Friedman, D.H. (1996).  Binding ties: The roles of adult siblings of persons with mental retardation.  Mental Retardation, 34, 83-93.
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Orsmond, G.I., & Seltzer, M.M. (2000). Brothers and sisters of adults with mental retardation: The gendered nature of the sibling relationship. American Journal on Mental Retardation, 105, 486-508.
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Orsmond, G.I., Seltzer, M.M., Krauss, M.W., & Hong, J. (2003). Behavior problems in adults with mental retardation and maternal well-being: Examination of the direction of effects. American Journal of Mental Retardation, 108, 257-271.
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Ryff, C.D., & Seltzer, M.M. (1996).  The uncharted years of midlife parenting.  In C.D. Ryff & M.M. Seltzer (Eds.), The parental experience at midlife.  Chicago: University of Chicago Press.

Seltzer, M.M. (1998).  Service utilization patterns and organization of the service delivery system for persons with mental retardation and other developmental disabilities.  In S. Allen & V. Mor (Eds.), Living in the community with disability: A cross-group perspective.  New York: Springer.

Seltzer, M.M. (1997).  Later life parenting by older mothers of adults with disabilities.  In E. Bleckman (Ed.), Behavioral Medicine for women:  A comprehensive handbook.  NY: Guildford Publications.

Seltzer, M.M. (1992).  Family caregiving across the full life span.  In L. Rowitz  (Ed.), Mental retardation in the year 2000.  New York: Springer-Verlag.

Seltzer, M.M. (1992).  Aging in persons with developmental disabilities.  In J. E. Birren, R. B. Sloane, & G. D. Cohen (Eds.), Handbook of mental health and aging.  New York: Academic Press.

Seltzer, M.M. & Greenberg, J.S. (1999). The caregiving context: The intersection of contextual and individual influences in the experience of family caregiving. In C.D. Ryff & V. Marshall (eds.) The self and society in aging processes (pp. 241-251).  New York: Springer.

Seltzer, M.M., Greenberg, J.S., & Krauss, M.W. (1995).  A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation.  Psychology and Aging, 10, 64-75.
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Seltzer, M.M., Greenberg, J.S., Krauss, M.W., Gordon, R.M., & Judge, K. (1997). Siblings of adults with mental retardation or mental illness: Effects on lifestyle and on psychological well-being. Family Relations, 46, 395-406.
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Seltzer, M.M., Greenberg, J.S., Krauss, M.W., & Hong, J. (1997).  Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness.  Family Relations, 46, 13-22
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Seltzer, M.M., Greenberg, J.S., Orsmond, G.I., & Lounds, J. (2005). Life course studies of siblings of individuals with developmental disabilities. Mental Retardation, 43(5), 354-359.
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Seltzer, M.M., & Heller, T. (1997). Families and caregiving across the life course: Research advances on the influence of context. Family Relations, 46, 321-323.
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Seltzer, M.M.  & Krauss, M.W. (2001).  Quality of life of adults with mental retardation/developmental disabilities who live with family.  Mental Retardation and Developmental Disabilities Research Reviews, 7, 105-114.
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Seltzer, M.M., & Krauss, M.W. (1998).  Families of adults with Down syndrome.  In J. F. Miller, L. A. Leavitt, & M. Leddy (Eds.), Communication development in young children with Down syndrome.  Baltimore: Paul H. Brookes.

Seltzer, M.M., & Krauss, M.W. (1994).  Aging parents with co-resident adult children:  The impact of lifelong caregiving.  In M.M. Seltzer, M.W. Krauss, & M.P. Janicki (Eds.), Life course perspectives on adulthood and old age.  Washington, DC: American Association on Mental Retardation.

Seltzer, M.M., Krauss, M.W., Choi, S.C., Hong, J. (1996).  Midlife and later life parenting of adult children with mental retardation.  In C.D. Ryff & M. M. Seltzer (Eds.), The parental experience at midlife. Chicago: University of Chicago Press.

Seltzer, M.M., Krauss, M.W., & Heller, T. (1991).  Family caregiving over the life course.  In M.P. Janicki, & M. M. Seltzer (Eds.), Aging and developmental disabilities:  Challenges for the 1990s.  Washington, DC: Special Interest Group on Aging, AAMR.

Seltzer, M.M., Krauss, M.W., Hong, J., Orsmond, G. I. (2001). Continuity or discontinuity of family involvement following residential transitions of adults with mental retardation. Mental Retardation, 39, 181-194.
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Seltzer, M.M., Krauss, M.W., & Tsunematsu, N. (1993).  Adults with Down syndrome and their aging mothers: Diagnostic group differences.  American Journal on Mental Retardation, 97, 464-508.
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Seltzer, M.M., Krauss, M.W., Walsh, P., Conliffe, C., Larson, B., Birkbeck, G., Hong, J., & Choi, S. C. (1995).  Cross-national comparisons of aging mothers of adults with intellectual disabilities.  Journal of Intellectual Disability Research, 39, 408-418.
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