Cockayne Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Cockayne Syndrome"

Who to Contact

Share and Care Cockayne Syndrome Network
PO Box 282
Waterford, Virginia, 20197
703-727-0404
703-265-2009 (fax)
JackieClark@aol.com 
http://www.cockayne-syndrome.org/

This is an international network that was founded in 1981. It offers mutual support and networking for families affected by Cockayne Syndrome (cachectic dwarfism). This includes the sharing of information between families and professionals, maintaining a registry of families, and providing referral information, a newsletter, phone support, and pamphlets (which are available in English, Spanish and Japanese).

Where to Go to Chat with Others

• Cockayne Syndrome Chat Room

Learn More About It

• Cockayne Syndrome
  From Online Mendelian Inheritance in Man (OMIM)

• Cockayne Syndrome

• Cockayne's Syndrome Handbook

• Cockayne's Syndrome - from eMedicine

Web Sites

• Share and Care Cockayne Syndrome Network