Last Updated
August 28, 2009
Links to Related Resources
- ALS Association
http://www.alsa.org/
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
- ALS Research at Johns Hopkins
http://www.alscenter.org/
The Robert Packard Center for ALS Research is the only one of its kind dedicated solely to the disease. Although the Center operates within the Johns Hopkins Hospital at the Medical School's East Baltimore campus, its scope is international. All of the Center's work, however, focuses on new therapies to slow or cure ALS.
- American Association for the Advancement of Science
http://archives.aaas.org/docs/documents.php?doc_id=425
The AAAS's Position Statement on Human Cloning
- American Parkinson Disease Association
http://www.apdaparkinson.org
The American Parkinson Disease Association, Inc. was founded to "ease the burden and find a cure" for Parkinson's disease.
- American Society for Cell Biology
http://www.ascb.org/
The American Society for Cell Biology brings together experts in the field of cell biology to advance scientific knowledge, increase public awareness of the importance of biomedical research and guide national policy on the education, training and career development of biomedical researchers.
- British Society for Cell Biology
http://www.kcl.ac.uk/kis/schools/life_sciences/biomed/bscb/
The British Society for Cell Biology exists to promote the advance of research in all branches of cell biology and to encourage the interchange of information. The Society organizes and supports meetings and conferences relevant to cell biology and plays an increasing role in raising awareness of science policy issues in the UK.
- Bryon Riesch Paralysis Foundation
http://www.brpf.org/
The Bryon Riesch Paralysis Foundation's goal is to find a cure for paralysis through funding the latest in medical research and to provide assistance to those that suffer from neurological disorders.
- Children's Neurobiological Solutions
http://www.cnsfoundation.org/
A nonprofit research foundation dedicated to improving the lives of children with neurological disorders by promoting research focused on brain repair and regeneration.
- Clinical Trials
http://clinicaltrials.gov/ct/search?term=stem+cells&submit=Search
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals. This is the results of a search for "stem cells"
- Coalition for the Advancement of Medical Research
http://www.camradvocacy.org/
The Coalition for the Advancement of Medical Research (CAMR) is comprised of nationally-recognized patient organizations, universities, scientific societies, foundations, and individuals with life-threatening illnesses and disorders, advocating for the advancement of breakthrough research and technologies in regenerative medicine - including stem cell research and somatic cell nuclear transfer - in order to cure disease and alleviate suffering.
- EuroStemCell: European Consortium for Stem Cell Research
http://www.eurostemcell.org/
EuroStemCell aims to build the scientific foundations required to take stem cell technology to the clinic. Combining the expertise of more than 100 researchers across 27 research groups in 16 partner institutions, it is a virtual European stem cell centre. Our research is focused on identifying, comparing and evaluating the properties and clinical potential of different types of stem cells.
- Fraxa Research Foundation
http://www.fraxa.org/
FRAXA was founded to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation.
- Global Stem Cell Research Centers
http://www.mbbnet.umn.edu/scmap/scresearchmap.html
A map of global stem cell research centers.
- Huntington's Disease Society of America (HDSA)
http://www.hdsa.org/
Dedicated to finding a cure for Huntington's Disease (HD) while providing support and services for those living with HD and their families. HDSA promotes and supports both clinical and basic HD research, aids families in coping with the multi-faceted problems presented by HD and educates the families, the public and health care professionals about Huntington's Disease. Our HD families give a face to Huntington's Disease. HDSA is its voice.
- International Society of Stem Cell Research
http://www.isscr.org/
The International Society for Stem Cell Research is an independent, nonprofit organization established to promote and foster the exchange and dissemination of information and ideas relating to stem cells, to encourage the general field of research involving stem cells and to promote professional and public education in all areas of stem cell research and application.
- International Stem Cell Forum
http://www.stemcellforum.org.uk/
The International Stem Cell Forum (ISCF) is made up funders of stem cell research from around the world. It was founded in January 2003 to encourage international collaboration and funding support for stem cell research, with the overall aim of promoting global good practice and accelerating progress in this vitally important area of biomedical science.
- International Stem Cell Research Centers
- Michael J. Fox Foundation
http://www.michaeljfox.org
The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda.
- The Myelin Project
http://www.myelin.org/
The Myelin Project aims to accelerate research on myelin repair. Myelin can be destroyed by hereditary neurodegenerative disorders such as the leukodystrophies, and by acquired diseases such as multiple sclerosis. All together, demyelinating diseases affect more than two million people worldwide.
- National Academies Human Embryonic Stem Cell Research Advisory Committee
http://dels.nas.edu/bls/stemcells/
The National Academies Human Embryonic Stem Cell Research Advisory Committee will monitor scientific developments and changing ethical, legal, and policy issues related to human embryonic stem cell research and prepare revisions to the
Guidelines for Human Embryonic Stem Cell Research.
- National Health Council
http://www.nationalhealthcouncil.org/advocacy/position_papers.htm
The National Health Council Position Statement on Human Cloning and Human Cloning Legislation and Stem Cell Research.
- NIH Stem Cell Information
http://stemcells.nih.gov/
The NIH Stem Cell Task Force was formed to enable and accelerate the pace of stem cell research by identifying rate limiting resources (both material and human) and develop initiatives to enhance these resources and seek the advice of scientific leaders in stem cell research about the challenges to moving the stem cell research agenda forward and strategies NIH may pursue to overcome these challenges.
- National Parkinson Disease Association
http://www.parkinson.org/
The NPDA has a mission to find the cause and cure for Parkinson's disease and related neurodegenerative disorders through research.
- Parkinson's Action Network
http://www.parkinsonsaction.org/
The Parkinson's Action Network (PAN) is the unified advocacy voice of the Parkinson's community, fighting for a cure within five years. Through education and interaction with the Parkinson's community, scientists, policy and opinion leaders, and the public at large, PAN advocates for increased and accelerated investment of public resources to ease the burden and bring a cure to the million Americans who suffer from Parkinson's.
- Parkinson's Disease Foundation
http://www.pdf.org/
The Parkinson's Disease Foundation (PDF) is a national non-profit organization devoted to education, advocacy, and the funding of research. We strive to bring help and hope to as many as one million Americans who now suffer from this debilitating condition.
- Society for Neuroscience
http://web.sfn.org/
The Society for Neuroscience is a nonprofit membership organization of basic scientists and physicians who study the brain and nervous system. The Society's primary goal is to promote the exchange of information among researchers. The Society works closely with other scientific societies, disease advocacy organizations, and the National Institutes of Health.
- Stem Cell Action Network
http://stemcellaction.org/
We are a grassroots, volunteer group of patients and their families and friends who believe that stem cell research has the potential to save the lives of those afflicted by many so-called 'hopeless' medical conditions, including Parkinson's, Alzheimer's, juvenile diabetes, M.S., A.L.S. and spinal cord injury.
- The Stem Cell Community
http://www.stemcellcommunity.org/
The Stem Cell Community is a forum for sharing human embryonic stem cell information. The site is privately funded, and curated by members of the Stem Cell Center at the Burnham Institute for Medical Research in La Jolla, California.
- Stem Cell and Regenerative Medicine Center
http://www.stemcells.wisc.edu/
The UW–Madison Stem Cell and Regenerative Medicine Center (SCRMC) is an umbrella organization operating under the School of Medicine
and Public Health and the Graduate School. The SCRMC provides a central point of contact, information and facilitation for all stem cell research activities on campus. The center’s mission is to advance the basic science of stem cell biology and foster breakthroughs in regenerative medicine through faculty interactions, research support and education.
- Wisconsin Chapter of the Huntington's Disease Society of America
http://www.hdsa-wi.org/
HDSA - Wisconsin was created to serve the specific needs of Wisconsin families with Huntington's Disease. The chapter offers services to affected individuals, their families, and their caregivers. Chapter also provides support to neurologists and other medical doctors who have patients with this rare condition. In addition, we offer assistance to nursing homes and other care facilities so that they can better meet the needs of their HD residents.
- Wisconsin Stem Cell Now, Inc.
http://www.wistemcellnow.org/
A not-for-profit, grassroots organization fighting on behalf of the millions of Americans in Wisconsin and across the country who are currently suffering from serious debilitating diseases.
- WiCell
http://www.wicell.org/
The WiCell Research Institute is a non-profit organization established in October 1999 to advance stem cell research. Through efforts within our organization and other research institutions, we look to uncover the full potential of stem cells.
