Overview
Success in the classroom, in the community, and on the job requires that young people are healthy. It is therefore imperative that young people with health issues have the knowledge and skills needed to maintain and sustain their health and wellness. To ensure this, health related goals need to be included in the Individualized Education Plan (IEP).

Background
Over the past several years, staff from the regional Children and Youth with Special Health Care Needs (CYSHCN) Centers in the state of Wisconsin have received an increased number of questions from parents and providers regarding medical issues and the Individualized Education Plan (IEP). In an effort to address some of these questions, three PowerPoint presentations were developed along with companion handouts. CYSHCN regional staff hope that this cd–rom will provide a core knowledge base on this very important topic. For additional information and/or resources, please contact your regional Children and Youth with Special Health Care Needs Center.

Purpose
The primary purposes of this cd-rom are:

• To collect materials on this topic in one location
• To empower professionals with the content to present on this topic
• To nurture an ongoing dialogue around health and the IEP amont youth, families, health providers, and school teams

How to Use
This cd-rom includes a variety of information about Health and the IEP including:

• Three PowerPoint presentations detailing how and why health–related matters can be included in the IEP
• Handout packets that correspond to each PowerPoint
• Resource handouts on a variety of topics related to health and school

You are invited to use and tailor this information to your audience, although we ask that original authorship and credit be respected.

For more information on this topic, please contact a regional Children and Youth with Special Health Care Needs Center.

Thanks also to the GHC Medical Home Team: Ann T. Behrmann, MD, Group Health Cooperative and Janice Cooney, PA–C, UW Family Practice for their contributions to the PowerPoint entitled “Partnerships with Healthcare Providers and Schools.”

Additional thanks to Debbie Kaufman and Jane Imholte, Madison school nurses, and Linda Caldart-Olson and Rachel Gallagher, School Nursing Health Services Consultants with the Department of Public Instruction for reviewing the PowerPoint entitled “Health Conditions and the IEP Process.”

Funding
Funding is provided by a Maternal and Child Health Title V Service Grant, Maternal and Child Health Bureau, Health Resources and Service Administration, US Department of Health and Human Services.

Contents
A. PowerPoints

1. Embedding Health Outcomes in the IEP CYSHCN (MSPowerPoint)
2. Health and the IEP (MS PowerPoint)
3. Partnerships with Healthcare Providers and Schools (MS PowerPoint)

B. Curriculum

1. Transition to Adult Health Care: A Training Guide in Two Parts (PDF Document)

C. Packets
Each packet of handouts correspond to the numbered power points above, although feel free to choose handouts most relevant to your topic. When available, the document’s url is also listed.

D. Additional Resources
Additional resources are included on this topic.

Packet 1 (related to ppt #1: Embedding Health Outcomes in the IEP CYSHCN)

1. You Are an Advocate for Your Child with Special Health Care Needs! (PDF)
   Developed by Family Voices, Inc.
   Website: http://www.familyvoices.org/Information/YouAreAnAdvocate.pdf
    
2. Provision of Educationally-Related Services for Children and Adolescents with Chronic Diseases and Disabling Conditions. (PDF)
   Committee on Children with Disabilities. February 2000. Pediatrics. Vol. 105 No. 2, American Academy of Pediatrics.
   Website: http://aappolicy.aappublications.org/cgi/reprint/pediatrics;105/2/448.pdf
    
3. Diabetes at School: What a Child’s Health Care Team Needs to Know About Federal Disability Law (Commentary).
   Kaufman, Francine K. 2002. Clinical Diabetes: Vol. 20 No. 2.
   Website: http://clinical.diabetesjournals.org/cgi/content/full/20/2/91
    
4. Safe Delivery of Care for Children with Diabetes in Schools. (PDF)
   Adopted January 12, 2005, National Association of School Nurses: Consensus Statement.
    
5. Transition Developmental Checklist. (PDF)
   Developed by Kentucky Commission for Children with Special Health Care Needs.
    
6. What’s A Medical Home? (PDF)
   American Academy of Pediatrics, Medical Home Initiatives for Children with Special Health Care Needs.
    
7. Care Plan by a Parent (PDF).
   September 15, 2005. Developed by a Parent of a Youth with Complex Medical Needs and the Southern Regional Children and Youth with Special Health Care Needs Center
    
8. Draft GHC Electronic Medical Home Care Plan. (PDF)
   November 2005.
    
9. Individual Health Summary for Student with Traumatic Brain Injury (PDF).
   Developed by Wisconsin Department of Public Instruction.
    

Packet 2 (related to ppt #2: Health and the IEP)

1. Issues Related to Students with Special Health Care Needs in the School. (PDF)
   Developed by Linda Caldart Olson and Judy O’Cane, Wisconsin Department of Public Instruction.
    
2. Individual Health Summary for Student with Traumatic Brain Injury (PDF).
   Developed by Wisconsin Department of Public Instruction.
    
3. Madison Metropolitan School District Special Needs information Form (PDF).
   3/2000.
    
4. DHFS/DPH/43011 Documentation of Instruction from Registered Nurse to Unlicensed School Personnel. (PDF)
    
5. Sample 504 Plan Document. Transition Digest: October 20, 2002, John Reiss, list moderator. (PDF)
    
6. Students with Chronic Illness: Guidance for Families, Schools, and Students. (PDF)
    
7. Tools and Information for School Nurses, Parents/Guardians and School Staff – Frequently Asked Questions. (PDF)
   P 46–56. From Children with Diabetes – A Resource Guide for Wisconsin Schools and Families. 12/02.

Packet 3 (related to ppt #3: Partnerships with Healthcare Providers and Schools)

1. Transition Health Care Checklist (PDF)
   A resource to help youth/young adults with special health care needs make a successful transition to adult living that includes their health and health care. March 2006. Pennsylvania Department of Health.
    
2. Parent Brief: What Does Health Have to do with Transition? Everything!
   Ceci Shapland, May 2006. National Center on Secondary Education and Transition and PACER Center.
    
3. Guidelines for the Administration of Medication in School. (PDF)
   Pediatrics. Vol. 112 No. 3 September 2003, American Academy of Pediatrics, Committee on School Health.
    
4. Getting What You Need at Your Doctor Visit (Tip Sheet). (PDF)
   Developed by Patti Hackett, Glen Gallivan, KASA and Faye Manaster. Healthy & Ready To Work National Center.
    
5. One Page Portable Medical Summary (PDF, Sample).
   Healthy & Ready To Work National Center.
    
6. Staying Healthy For Youth & Teachers (PDF, Tip Sheet).
   Developed by Patti Hackett and Glen Gallivan. Healthy & Ready To Work National Center.
    
7. Success at School Involves You (PDF): School Meetings, Your Role in Making Them Work.
   Healthy & Ready To Work National Center.
    
8. Care of Children with Diabetes in School and Day Care Settings (Position Statement). (PDF)
   Diabetes Care, Vol. 25 Supplement 1, January 2002. American Diabetes Association.
    
9. Transition to Adult Care Developmental Activities Checklist (PDF, Pilot Form).
   01/02 Shriners Hospital for Children.
    

Miscellaneous Resources

1. Health Conditions and the IEP Process. (PDF)
   Developed by the Southern Regional Children and Youth with Special Health Care Needs Center 2006.
    
2. Health Information and Advocacy Center, Inc. (PDF, Fact Sheet).
   2000. Health Information & Advocacy Center, a project of Parent Advocacy Coalition for Educational Rights (PACER) Center.
    
3. Covered Services, Community-Based Therapies and School-Based Services. (PDF)
   State of Wisconsin Medicaid Program School–Based Service Handbook, PHC 1423 April 2005.
    
4. Wisconsin Medicaid School–Based Services Fact Sheet. (PDF)
   State of Wisconsin Department of Health and Family Services. PHC 1148 12/04. page 57.
    
5. National Standards & Quality Indicators (PDF)
   Transition Toolkit for Systems Improvement. National Alliance for Secondary Education and Transition.
    
6. Transition to Adult Health Care: A Training Guide in Two Parts. (PDF)
   Developed by Debra Gillman with consultant Ben Schlicht. Waisman Center and Healthy and Ready. January 2005.