Personal Health Records / Care Notebooks

Welcome!

One this site you will a number of resources to help you create a Personal Health Record / Care Notebook for your child who has disabilities, special health care needs or both.

This website includes:

• Links to web sites
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• Documents
  Many files are on the disk can be accessed without an Internet connection.
  • PDF Documents
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  • MS Word & Excel
    You will need MS Office programs to view and use some files.
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  • Templates
    Some Word and Excel files are templates. Word templates end in .dot
    Excel templates end in .xlt
    To learn more about templates and how to use them, please see this document:
    Templates and How to Use Them

Look for getting started, articles about Care Plans, downloadable templates and forms, web-based care notebooks, software-based personal health records, reference information, and some extras. You can always find this menu just below the banner at the top of each page.

About Personal Health Records / Care Notebooks

A Care Notebook is an organizing tool for families who have children with special health care needs. Use a Care Notebook to keep track of important information about your child’s health and care. Keeping your own personal health record (PHR) allows you to provide doctors with valuable information that can help improve the quality of care you receive. A PHR can help reduce or eliminate duplicate tests and allow you to receive faster, safer treatment and care in an emergency. In short, a PHR helps you play a more active role in yours and your loved ones’ healthcare.

Types of Personal Health Records / Care Notebooks

• You can simply gather your information and place it in a file folder.
• You can transfer the information to a computer disk, and carry that with you.
• Portable devices are available that allow you to carry the information on a chip inside something called a USB drive, that plugs into most computers.
• Internet-based services offer secure servers that you access from a computer and on which you enter your information. Some of these are free, and for others you may have to pay a fee or subscription.