Welcome
The Children and Adults with Spina Bifida website has been around since 1996. It is associated with SB-List, the first Internet Discussion list for parents of children with spina bifida. In particular, the focus of this site and SB-List is myelomeningocele, the most severe form of spina bifida.
If you are an adult with spina bifida, or the parent of a child with a different type of spinal dysraphism (spina bifida occulta, lipomyelomeningocele, tethered cord syndrome, etc) please see the Resources & Links page for discussion lists and information related to your issues.
What's New:
- I've developed a blog to post information on web site updates, news articles, medical studies, etc. You can view it here: http://myelomeningocele.blogspot.com/
- The new Spina Bifida Research Blog is located here:
http://spina-bifida-bibliography.blogspot.com
Back, Left to Right, Former Surgeon General C. Everett Koop, Family Voices National Policy Director Julie Beckett, Linda Rowley. Front, Mitch Hamilton.