Resources & Links

Online Discussion Groups

SB-List
A discussion list for parents of children with spina bifida. The list focuses on information sharing and support. Our children range in age from infants not yet born to 30 and 40 year olds.
SB-Parents
http://groups.yahoo.com/group/SB-Parents/
List for parents/family/caregivers/friends of people with spina bifida, or people with SB, to join to discuss issues, support, and other relevant issues. ZERO FLAME TOLERANCE. Topic may wander, but anything having nothing to do with SB needs to be taken to the SB-Parents-Chat list (SB-Parents-Chat-subscribe@yahoogroups.com) where anything can be posted (excluding offensive material, flames, chain letters, and virus warnings).
SBMoms-N-Dads
http://groups.yahoo.com/group/SBMoms-N-Dads/
This list is for moms, dads & caretakers of children with Spina Bifida. No spam or flames allowed.
FetalSurgery-4-SB
http://groups.yahoo.com/group/FetalSurgery-4-SB/
This is an informational and support list for those interested in FS4SB and for those who are current or former patients. This list can also be used for general Spina Bifida information.
MFSFSB
A place for support for families of those who have had Maternal Fetal Surgery for Spina Bifida
SB-Learning
http://groups.yahoo.com/group/SB-Learning/
This list is for parents, care givers, relatives or educators of children born with spina bifida/hydrocephalus or other neural tube defects who want to become familiar with the educational process. Discussions are about the neurological issues our children have and the impact these issues have on learning. This is a restricted list.
Adults Central for Spina Bifida
http://groups.yahoo.com/group/adultscentralforspinabifida/
Adults with Spina Bifida
A Place To Talk About SB And More
Adult Females With Spina Bifida
This group is designed for women with Spina Bifida primarily because there are times when we ladies don't have an opportunity to convey our innermost thoughts and concerns in other groups. Discussion about personal care issues associated with SB, intimacy and relationships, life's little stressors, or just about anything that comes to mind, is fair game as long as it's stated in a respectful manner.