The Waisman Center provides comprehensive clinical care and support for children with disabilities and their families. The Waisman Center Down Syndrome Clinic is a partnership with UW Health and the American Family Children's Hospital. An interdisciplinary team of professionals works together to provide clinical care of children with a diagnosis of Down syndrome.
Children and their families are seen for initial and follow-up visits to address concerns related to Down syndrome in the areas of: feeding, growth, development, communication, behavior, hearing, therapy and support services. Genetic counseling is also provided in the clinic. Individualized care is provided according to the needs of the child identified in collaboration with their parent or guardian. The guidelines will be followed from the American Academy of Pediatrics Standards in the Care of Children with Down Syndrome.
If you are interested in an appointment, please have your/your child’s primary care provider fill out a referral at uwhealth.org/referral. We will call you to schedule an appointment once we have processed the referral.
|Maria Stanley, MD
Developmental Behavioral Pediatrician
|Jessica Scott Schwoerer, MD
Clinical Biochemical Geneticist
|Stephanie Carpenter, RN
|Jon Douglas, AuD
|Pat Edwards, PT, MS, DPT, PCS
|Amy Ford, MS, RD/CD
|Sharon Gartland, OTD, OTR/L
|Amy Lyle, MSSW
|Lindsay McCary, PhD
|Christie Turcott, MS, CGC
From the east—follow University Avenue through campus and then go off to the right on Campus Drive; stay in the right lane and turn right at the University Bay Drive/Farley Avenue intersection.
From the west—follow University Avenue
and turn left at the University Bay Drive/Farley Avenue intersection.
After making the turn (from either direction)... Continue straight over
the hill; the road at that point becomes Highland Avenue. The Waisman
Center is at the bottom of the hill on the left, across the street from
We are looking for adults with intellectual disability over the age of 30 years and their caregivers to participate in a study that will help us understand how leisure activity predicts healthy aging and well-being for adults with intellectual disability.
The study involves a 1.5-hour visit to the Waisman Center, your home, or disability center. Both of you will complete questions about the leisure activity and well-being of the adult with intellectual disability. You will also complete a 7-day daily diary together in which you will answer a short list of questions each day (takes 5-10 minutes per day). You will each be paid $10 for participating.
PI: Sigan Hartley, PhD
If you have a child with Down syndrome between 2 and 5 years of age, you and your family are invited to participate in a research study conducted by Dr. Audra Sterling at the Waisman Center, University of Wisconsin – Madison.
The purpose of this study is to learn more about the relationships among parenting, social interactions, and language learning in children with Down syndrome.
If you decide that you and your family would like to participate in this study, we will ask you to complete questionnaires related to your child’s development and daily behaviors, as well as your marital relationship and overall health. We will come to your home and record your family as you interact during different daily activities, such as during making a snack together, playing and reading a story. During our visit, we will also complete developmental assessments through interacting with your child. Additionally, we will request that you use our audio recording device to record 1-2 evenings for three hours before bedtime. Your family will be compensated $50 for your time.
If you are interested in this study or would like to learn more, please call the Study Coordinator at (608)263-5145 or email RIDDLL@waisman.wisc.edu.
PI: Audra Sterling, PhD
The Waisman Center is seeking adults with Down syndrome, ages 30 and above, for a research study involving an MRI and a PET scan to examine amyloid plaque in the brains of these individuals. Researcher Brad Christian, PhD, will look at the link between amyloid plaques and Down syndrome. Individuals with Down syndrome have an extra 21st chromosome, which contains the gene that makes these proteins and could lead to earlier development of Alzheimer's disease.
PI: Brad Christian, PhD
PURPOSE: To learn more about how spoken language samples can be used to measure change over time in the spoken language, problem solving, and behavior of individuals with genetic syndromes. In the future it is possible that measures of spoken language production may be useful as one way to learn whether different medications can help individuals with genetic syndromes to learn and use language more effectively.
WHO: We are looking for boys and girls aged 6 to 23 years with Down Syndrome.
WHAT: This is a longitudinal study which means we will ask you and your child to visit the Waisman Center three times over a 2-year time period. At each visit, we will collect a language sample in three different ways; a conversation, looking at a picture book, and participating in a series of interactive activities with an examiner. Additionally, we will ask you, the parent/guardian to fill out some questionnaires and participate in an interview about your child’s everyday living skills. You will be paid $50 for each visit as well as reimbursed for any traveling costs.
Please contact our study coordinator, Susen Schroeder, for information at 608.263.5145 or email@example.com
Principal Investigator: Audra Sterling, PhD
The Vocal Tract Development Laboratory at the Waisman Center, directed by Dr. Houri K. Vorperian, is currently recruiting individuals of all ages to participate in a speech and sound reflection study. The lab is interested in characterizing the development of the mouth and throat structures in typically developing individuals and individuals with Down syndrome. The purpose of the lab's research is to understand how changes in the anatomy of the mouth and throat affect the production of speech sounds.
This current study includes a hearing screening and having your voice recorded while repeating sounds, words, and sentences. Eligible participants may also be asked to breathe into a tube. The tube makes clicking noises to measure the inside of the mouth and throat. Participants with recent head or neck imaging (CT or MRI scans) are highly desired, but those without imaging may still
You can view this study's consent form as well as an informational flyer here: http://www.waisman.wisc.edu/vocal/ongoing-studies.html
Please contact the Vocal Tract Lab at 608.263.5610 or email firstname.lastname@example.org if you have any questions or would like to schedule a visit.
PI: Houri K. Vorperian, PhD