University of Wisconsin–Madison

Bone Dysplasia Clinic

Welcome

Doctor with patientsThe Waisman Center Clinics provide comprehensive clinical care and support for children with disabilities and their families. The Waisman Center Bone Dysplasia Clinic is a partnership with UW Health and the American Family Children’s Hospital. The Bone Dysplasia Clinic provides interdisciplinary clinical care for individuals who have or suspect may have bone growth disorders (principally dwarfing disorders) and bone structure abnormalities, as well as consultative services to local health care providers.

YOUR CLINIC VISIT

If you are interested in an appointment, please have your/your child’s primary care provider fill out a referral at uwhealth.org/referral.  We will call you to schedule an appointment once we have processed the referral.

  • Prior to your appointment, a packet of materials will be sent to you including directions to the Waisman Center and a parking permit. Park in the designated BLUE visitor and client parking stalls. (See map and directions below.)
  • Our clinic is located on the first floor of the Waisman Center, 1500 Highland Avenue. Plan to arrive 20 minutes prior to your scheduled appointment. Check in at the clinic reception desk located just beyond the Waisman Center’s main lobby.
  • A medical assistant will obtain your child’s height, weight, pulse and blood pressure. You and your child will be taken to an examination room.
  • A medical geneticist or genetic counselor will obtain a thorough health and family history. You or your child will be thoroughly examined and staff will discuss the evaluation and answer any questions you may have.
  • Other professionals may also provide evaluations and/or consultations as needed.
  • Necessary laboratory evaluations will be discussed and coordinated.

NOTE: Full visit information will be shared in writing with you and your child’s primary health care provider, subspecialists, and others as indicated by signed release of information forms.

GOALS OF THE CLINIC TEAM

  • Provide comprehensive, state-of-the-art diagnostic services, care coordination and genetic counseling.
  • Educate you and your family about your child’s disorder, associated complications and the genetic causes and their implications.
  • Provide health care counseling about potential risks and preventive behaviors.
  • Refer and collaborate with other health professionals to meet your child’s special needs.
  • Provide information on community resources and services to support your child and family.
  • Support and advocate for the patient and family.

Clinic Director

Clinic Coordinator

Peggy Modaff, MS, CGC

Genetic Counselor