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In-Person and Virtual Day with the Experts: Down Syndrome 2023
March 11 @ 9:00 am - 11:00 amFree
In-person and Virtual
Learn about advances in research and clinical services and hear from a panel of experts—individuals with Down syndrome and family members.
To learn more about the series visit: Waisman Center Day with the Experts Outreach Page.
Note: All Day with the Experts presentations are recorded and archived.
Visit the Down Syndrome Hub Page to learn more about Waisman Down syndrome activities
For additional details call 608.263.5837 or email to email@example.com
Saturday, March 11, 2023 | 9:00 a.m. – 11:00 a.m.
Refreshments at 8:30 a.m for in-person attendees. Virtual via Zoom.
|When:||Saturday, March 11, 2023
9:00 a.m. – 11:00 a.m.
|In-Person:||John D. Wiley Conference Center
North Tower, Room T216
Waisman Center, UW-Madison
1500 Highland Ave
Madison, WI 53705
|Virtual:||Live Online via Zoom – Register to obtain Zoom code|
|About:||Learn about advances in research and clinical services and hear from a panel of experts—individuals with Down syndrome and family members.|
|Registration:||Click here to register for Down Syndrome Day with the Experts|
Hosted in partnership with the Down Syndrome Association of Wisconsin-South Central (DSAW) and GiGi’s Playhouse
Sponsored by the Friends of the Waisman Center
EVERYONE WELCOME • PLEASE REGISTER
VISIT: The Down Syndrome Hub Page to learn more about Waisman Down syndrome activities
Schedule & Program
Maria Stanley, MD, Medical Director, Waisman Center Clinics
|9:05 – 9:25 am||“Lifestyle and Alzheimer’s Disease in Down Syndrome”|
|Sigan Hartley, PhD, Professor, Human Ecology and Waisman Investigator
Due to having three copies of chromosome 21, people with Down syndrome are at risk for Alzheimer’s disease. However, some people with Down syndrome experience cognitive declines at a younger age than others. Emerging evidence suggests that certain lifestyle factors may serve as resiliency factors and are related to a later age of cognitive decline. This talk will provide an overview of evidence regarding the potential benefit of two lifestyle factors – physical activity and employment – on cognitive aging in people with Down syndrome. Further directions in this line of research and implications for people with Down syndrome and their families will be discussed.
|9:25 – 9:45 am||“The Future of Prevention and Treatment of Alzheimer’s Disease in Down Syndrome”|
|Brad Christian, PhD, Professor, Medical Physics and Psychiatry, Associate Director, Waisman Center
People with Down syndrome are at very high risk for developing Alzheimer’s disease, particularly when they are 50 years old and beyond. While exciting progress is being made in the development of potential therapies for treating Alzheimer’s disease in the general population, people with Down syndrome have not been included in the testing of therapies or given access to some of these promising treatments. Fortunately this will be changing in the very near future! This talk will present our research findings that reveal the changes in the brain during the development of Alzheimer’s disease and how emerging drug therapies are being developed to alter the trajectory of disease progression. Plans for future clinical trials specific to individuals with Down syndrome will also be discussed.
|9:45 – 10:15 am||“The Road to Adulthood: A Brief Exploration of Youth to Adult Transition”|
|Julie Hajewski, MSN, A-NP, APNP, Wisconsin Youth Health Transition Initiative, Provider Education &
Amy Lyle, MSSW, Senior Clinical Social Worker, Clinic Coordinator, Down Syndrome Clinic
Don’t let life pass you by! Join Amy Lyle and Julie Hajewski as they offer a brief glimpse into youth-to-adult transition, with a focus on healthcare. Amy will get us started with an overview of life choices and considerations during transition. Julie will talk specifically about some of the steps of youth to adult health care transition and will offer several valuable resources for self-advocates, families, and caregivers to facilitate their health care transition journey.
|10:15–11:00 am||PANEL DISCUSSION that includes individuals with Down syndrome and family members
EVERYONE WELCOME • PLEASE REGISTER