UCEDD News

  • PKU patients around Wisconsin are grappling with the formula shortage too

    People with metabolic disorders who require formula to ensure adequate nutrition are among those dealing with a months long shortage — the Waisman Center at UW-Madison is seeking to help source alternatives, even as such options can be stressful.

  • LEND 2022

    New method of assessing LEND’s effectiveness evaluates five-year outcome of trainees

    From physicians to speech language pathologists, to social workers and nutritionists, there are a wide range of professionals that help to support the services and supports that help people with IDD to thrive.

  • The Bone Dysplasia Clinic’s many decades of helping families

    The Bone Dysplasia Clinic’s many decades of helping families

    The start of the Waisman Center’s Bone Dysplasia Clinic was a case of serendipity. It was 1980 and Richard Pauli, MD, a pediatric geneticist, had just arrived at UW-Madison. Over the course of the year, Pauli settled into his new role at UW Hospital. Then in 1981, he was approached by radiologist Len Langer, MD, with a strange request.

  • Gov. Evers proclaims March Developmental Disabilities Awareness

    In honor of Developmental Disabilities Awareness month during March, Wisconsin Governor Tony Evers issued a proclamation raising awareness and highlighting the many contributions of Wisconsinites with disabilities. The proclamation also underscores the barriers and challenges …

  • Eva Borenitsch and Family

    A life full of love and magic: Eva S. Borenitsch

    Eva Susan Borenitsch was magical. She knew no limits. “We called her our little unicorn,” says her mom Emily Borenitsch.

  • Innovative UW Undiagnosed Genetic Disease Clinic seeks to identify rare genetic conditions

    The UW Center for Human Genomics and Precision Medicine at the UW School of Medicine and Public Health recently opened its first patient clinic, the UW Undiagnosed Genetic Disease Clinic at the Waisman Center.

  • Padres e Hijos en Acción

    UCEDD project to address health equity for Latino families of children with developmental disabilities

    Padres e Hijos en Acción and the Waisman Center UCEDD announced a $330,000 grant to improve local health care responsiveness to the needs of Latino families of children with developmental disabilities and other special health care needs in Dane County.

  • Gail Chodron

    Building community connection: from feedmill to autism therapy center

    In the shadow of the Fennimore water tower sits a nondescript metal building. The once-abandoned former feed mill has now become The Learning Center, a unique resource for youth with autism and their families. Therapy …

  • Sebastian and Charlotte Sundly Cerebral Palsy Clinic Covid Masks

    Waisman CP Clinic strikes a balance

    Twins Sebastian and Charlotte Sundly are quite the contrasting pair, yet they balance one another out perfectly in some interesting and unexpected ways.

  • Ludell Swenson collage

    Remembering Ludell Swenson

    A peek into a collection of newspaper clippings about Ludell Swenson reveals the life of an extraordinarily accomplished person: marathoner, competitive tournament bowler, outspoken social services advocate. But what stands out the most is his …

  • Inside Waisman: Meet Lindsay McCary

    As a third year graduate student in school psychology at the University of South Carolina, Lindsay McCary, PhD, was looking for a new advisor to help her with her dissertation. At the time, Jane Roberts, PhD, had just joined the Department of Psychology and had some data available on younger children with the genetic disorder fragile X syndrome (FXS). McCary was immediately fascinated by the new professor’s research because it integrated both behavioral and physiological data to examine an individual’s observable characteristics.

  • Friends present staff, students and family awards

    The Friends of the Waisman hosts this annual event for members of the Friends organization; community supporters of the Waisman Center; and Waisman Center faculty, staff, and students. The 2020 Awards were presented at a virtual meeting on August 18 2020.

  • Catherine Kanter, MS, CCC-SLP

    The ECHO Effect

    Project ECHO (the mantra for which is “All teach, all learn”) uses video-conferencing technology to provide education and case consultation on best practice clinical services, training, and resources for individuals with specific healthcare needs that are difficult to meet locally. The Waisman Center ECHO platform will serve as a diagnostic and treatment training hub to share the center’s expertise on intellectual and developmental disabilities, such as autism, Down syndrome, and cerebral palsy, throughout the state and beyond.

  • Abygail Marx

    Serving During COVID-19: AAC Outreach Services

    The Communication Development Program (CDP) is an outreach program of the Waisman Center UCEDD at University of Wisconsin, Madison. This program was developed over 30 years ago in partnership with the Dane County Department of …

  • Lisa Marie Carilli-McCord

    Waisman Teacher Recognized with Staff Excellence Award

    Academic staff members bring UW–Madison’s mission to life — they are gifted teachers, world-class researchers and dedicated administrators. None of that has changed with COVID-19. If anything, their creativity and dedication is more needed and …

  • Maria Stanley telehealth

    Spurred by COVID-19 pandemic, telehealth becomes mainstream at Madison clinics, hospitals

    “It was awesome. It saves us from having to take time off work and having to travel,” said Nicole Gantz, whose 8-year-old son Joshua has Down syndrome and an attention disorder. Nicole and Joshua visited with Maria Stanley, a …

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