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About COVID-19: Children and Adults with Developmental Disabilities
About COVID-19: Children and Adults with Developmental Disabilities
- Coronavirus Social Story
An online flip book explaining Coronavirus in plain language from The Autism Partnership of Easterseals Chicago. - Dealing with COVID-19
Curated resources for those working with individuals who have developmental disabilities - My Hero is You – How children can help fight COVID-19
This book was a project developed by the Inter-Agency Standing Committee Reference Group on Mental Health and Psychosocial Support in Emergency Settings (IASC MHPSS RG). The project was supported by global, regional and country based experts in addition to parents, caregivers, teachers and children in 104 countries. Available in multiple languages: My Hero is You: all language versions - Green Mountain Self-advocates for individuals with ID/DD | Spanish
This resource is an 8-page booklet about the Coronavirus written in plain language. It was created by and for people with developmental disabilities. - What Should the Autism Community Know about COVID-19
From Autism Speaks - COVID-19 Resource Toolkit
From Wisconsin Board for People with Developmental Disabilities - What do Older Adults and People with Disabilities Need to Know?
U.S. Department of Health and Human Services, Administration for Community Living
About COVID-19: For Parents and Caregivers
About COVID-19: For Parents and Caregivers
- Preparing for Emergencies
From Family Voices of Wisconsin
- COVID-19: Information for Families of Children and Youth with Special Health Care Needs
From the American Academy of Pediatrics.
- Coronavirus Information and Resources
From Family Voices. Advice about what families of children with special health care needs can do.
- COVID-19: effects on children with chronic illnesses
A video from Children’s Hospital Colorado
- Resources Specific to COVID-19
From the Catalyst Center. Includes a Medicaid toolkit, frequently asked questions about Medicaid and the Children’s Health Insurance Program, coverage and benefits information, and additional links.
- COVID-19 Information & Resources
A resource list from the Society for Developmental and Behavioral Pediatrics
- COVID-19 Projections
This website from the University of Washington, uses a predictive model to estimate key data points related to the COVID 19 timeline by country and state.
- Understanding Coronavirus (COVID-19)
A comprehensive set of articles and some videos for parents of children of all ages. From KidsHealth at The Nemours Foundation
- Talking with children about Coronavirus Disease 2019
Messages for parents, school staff, and others working with children – From the CDC
- Coronavirus (COVID-19): Caring for Kids With Special Health Needs
From KidsHealth at The Nemours Foundation
- Kids and COVID-19: What Parents Should Know
From Yale Medicine
- 5 Things Everyone Should Know About the Coronavirus Outbreak
While news about the coronavirus has been evolving, doctors says the best advice is to follow public health directives and take care of yourself. From Yale Medicine
- Supporting Families During COVID-19 | Spanish
Includes sections on calming anxiety and coping skills and autism resources. From the Child Mind Institute
- COVID-19: Information for Families of Children and Youth with Special Health Care Needs
From American Academy of Pediatrics Council on Children with Disabilities
- COVID-19 Resources for People With Disabilities, Families, and Service Providers
The Arc is greatly concerned about the threat of COVID-19 to people with disabilities, their families, and the workforce that supports them.
American Sign Language Resources
American Sign Language Resources
- COVID-19 ASL
From the CDC – Centers for Disease Control
- Information for the Deaf Community about COVID-19/Coronavirus
From Communication Service for the Deaf, Inc.
- A Message from the NAD About Coronavirus (COVID-19)
Plus resources and links from the National Council of the Deaf
Augmentative & Alternative Communication Resources
Augmentative & Alternative Communication Resources
- Social Stories for Augmentative and Alternative Communication (AAC)
“Everyone is Worried about Getting Sick. What Can I Do?”
- Supporting Communication with Patients who have COVID-19
Free resources for patients who are intubated and cannot speak
- COVID-19 Communication Rights Toolkit
From Communication First
Civil Rights / Equal Access to Care
Civil Rights / Equal Access to Care
- HHS Warns States Not To Put People With Disabilities At The Back Of The Line For Care
Story from NPR
- Recognizing people with disabilities in the COVID-19 pandemic
From the Research and Training Center on Disability in Rural Communities
- DRW Open Letter to Providers on Healthcare Rationing
From Disability Rights Wisconsin
- Who will be left out if COVID-19 medical resources fall short?
Talk of rationing sparks apprehension for people with disabilities
- Protect Rights of People with Disabilities During COVID-19
From Human Rights Watch
- The Disability Community Fights Deadly Discrimination Amid The COVID-19 Pandemic
From Forbes Magazine
- Preventing Discrimination in the Treatment of COVID-19 Patients
The Illegality of Medical Rationing on the Basis of Disability – From DREDF
- COVID-19 Communication Rights Toolkit
From Communication First
Coping: Helping Children and Adults with Developmental Disabilities
Coping: Helping Children and Adults with Developmental Disabilities
- Anxiety, Autism: Five Prime Suspects
With tips for coping at home during the Coronavirus oubreak – From the Autism Research Institute
- How to talk to your child with ASD about frightening situations
From Autism Speaks
- Supporting Individuals with Autism through Uncertain Times
From Autism Focused Intervention Resources
- #COVIBOOK
Supporting and reassuring children around the world – available in multiple languages
- How to Ease Children’s Anxiety About COVID-19
From NAMI – The National Alliance on Mental Illness
- Helping Children Cope with Emergencies
From the CDC
- Coping After a Disaster
A Ready Wrigley activity book for children age 3-10
- Talking With Children: Tips for Caregivers, Parents, and Teachers During Infectious Disease Outbreaks | Spanish
From SAMHSA – Substance Abuse and Mental Health Services Administration
Coping / Mental Health Support for Parents and Caregivers
Coping / Mental Health Support for Parents and Caregivers
- Finding Your NEW NORMAL during COVID-19
Free online training for caregivers and providers
- Coping With Coronavirus: Managing Stress, Fear, and Anxiety
From the NIH, National Institute of Mental Health
- Daily Life and Coping
CDC – Centers for Disease Control
- Virtual Parent Support Group
Sign up online for free
- The Healthy Minds Program | Free
Translating pioneering neuroscience into tools for everyday life, our unique framework guides you through the four pillars of the science of training the mind.
- Coping with COVID-19 | pdf
From NAMI – The National Alliance on Mental Illness
- How to Protect Your Mental Health during the Coronavirus Outbreak
From NAMI – The National Alliance on Mental Illness
- Mental Health Considerations during COVID-19 Outbreak | pdf
From WHO – The World Health Organization
- How To Cope With Sheltering in Place | Spanish
From SAMHSA – Substance Abuse and Mental Health Services Administration
- Tips for Survivors: Coping With Grief After a Disaster or Traumatic Event
From SAMHSA – Substance Abuse and Mental Health Services Administration
- Coping with Stress During Infectious Disease Outbreaks | Spanish
From SAMHSA – Substance Abuse and Mental Health Services Administration
- COVID-19 Resources
From the American Psychological Association
- Coronavirus Anxiety – Helpful Expert Tips and Resources
A comprehensive set of links from the Anxiety and Depression Association of America (ADAA)
Diagnosis-Specific Resources
Diagnosis Specific Resources
Autism
- Resources for Autism Assessment and Care amid COVID-19 Pandemic
Target Audience: Families and caregivers of young children with ASD – Vanderbilt University
Down Syndrome
- Q&A on COVID-19 and Down Syndrome
From the Down Syndrome Medical Interest Group – USA
Cerebral Palsy
- Information About COVID-19 for Cerebral Palsy Patients
From Cerebral Palsy News Today
Fragile X Syndrome
- Information About COVID-19 for Fragile X Syndrome Patients
From Fragile X News Today
Rett Syndrome
- COVID-19 Message for the Rett Community
From RettSyndrome.Org
Education Resources for Children with Disabilities
Education Resources for Students with Disabilities
Supporting Children with Disabilities at Home
- Tips for Families in Supporting Their Children with Disabilities | Spanish | pdf
In Virtual Formats from the Florida Inclusion Network.
- Helping students with special needs cope and learn during COVID-19 pandemic
Maine teacher offers helpful tips for parents of kids with special needs amid the COVID-19 pandemic.
- Educating All Learners Alliance (EALA)
A group dedicated to equity and aimed at providing resources that students with disabilities need.
Policy Information
- Supplemental Fact Sheet Addressing the Risk of COVID-19 in Preschool, Elementary and Secondary Schools While Serving Children with Disabilities
From the US Department of Education
- Questions and Answers on Providing Services to Children with Disabilities During the Coronavirus Disease 2019 Outbreak
From the US Department of Education
- Webinar and fact sheet for protecting students’ civil rights during COVID-19 response
From the US Department of Education
- Resources on accessibility, distance learning options for students with disabilities during COVID-19 emergency
From the US Department of Education
- Provision of Special Education, Early Intervention, and 504 Services During the Coronavirus 2019 Outbreak
From AOTA – American Occupational Therapy Association
Returning to School After COVID-19
COVID-19 Resources for Returning to School
Wisconsin Resources
- Education Forward: Reopening Wisconsin Schools | PDF
Wisconsin Department of Public Instruction - COVID-19 Information for School Health Services | PDF
Wisconsin Department of Public Instruction - Returning to School After COVID-19 – Information for Parents and Guardians | PDF
Wisconsin Department of Public Instruction - COVID-19: Birth to 3 Program Operational Questions and Answers
- COVID-19: Schools and Child Care
Wisconsin Department of Health Services - Wisconsin FACETS – Parent Information and Support – COVID-19 Links
- Considerations for Reopening Schools and Child/Youth Programs
WI Association of School Boards – Scroll to second accordion panel - University of Wisconsin System Coronavirus Preparedness
The system has formed a Plan Ahead Team to review best practices and identify criteria for a return to in-person instruction for fall 2020. - UW-Madison – A Safe Return to Campus for Fall 2020
Nation-Wide Resources
- Returning Safely to In-Person Instruction: What Educators Need to Know
From the National Education Association - Going Back to School During COVID-19: News and Updates
From the National Education Association - Is School Safe? Will Districts Test For COVID-19? Answering Back-To-School Questions
From National Public Radio - Serving Special Needs Students During COVID-19: A Rural Educator’s Story
From EdWeek - School openings across globe suggest ways to keep coronavirus at bay, despite outbreaks
From Science Magazine - How schools across the globe are reopening amid the coronavirus pandemic
Some schools in rural parts of America have also reopened with new restrictions. – From EdSources - CDC tool helps parents weigh risks of returning kids to school amid coronavirus pandemic
It’s a tough and unprecedented decision for any guardian at this time, deciding if it’s safe for students to return to the classroom despite the virus risk. - School Decision-Making Tool for Parents, Caregivers, and Guardians
From the Centers for Disease Control - COVID-19 Planning Considerations: Guidance for School Re-entry
From the American Academy of Pediatrics - COVID-19: Special Education and Service Delivery
The resources and guidance listed below, from the National Association of School Psychologists – NASP, the federal government, and other agencies, may be helpful for school psychologists in determining how to continue offering services to students with disabilities as required by the Individuals with Disabilities Education Act (IDEA) during the COVID-19 outbreak. - What will a return to school during the COVID-19 pandemic look like? – What parents need to know about school reopening in the age of coronavirus.
From UNICEF - Considerations for Post COVID Return to School for Students with Disabilities and Special Healthcare Needs
From the National Association of School Nurses - Coronavirus Disease Updates
From the National Association of School Nurses
From Tim Markle:
E- mail: tmarkle@wisc.edu. Phone: 608-262-8033
- School Reopening Information (updated 7.28.20)
- The Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN; PI: Meg Comeau) has partnered with the AAP to offer the CMC & COVID-19 ECHO project, during which we have covered the topic of school re-entry for CMC, and wanted to share the resources and key takeaways we’ve gathered through these conversations.
- The lecture on this topic, presented by Nathaniel Beers MD, MPA, FAAP and Stephanie Porter MSN, RN, highlighted the AAP’s guidelines for re-opening schools (including physical distancing guidelines, PPE and face coverings, cleaning, and screening/testing), mental health needs of students, specific guidelines for CMC (such as medical technology), and lessons learned from the past that could assist this transition. Please access the recording and slides of the lecture for additional details.
- Key resources discussed during the ECHO that relate to the conversation on this group include:
- Information from the AAP re: School Re-Opening
§ *Much of this is covered in the ECHO lecture
- Resources for Schools
- Resources for Families
- Florida Back-to-School Checklist For Families– English, Spanish
- AAP’s HealthChildren.Org Return to School During COVID-19
- General COVID Information and Nationwide Tracking
This is not an exhaustive list of resources discussed during the ECHO; additional links to resources can be found in the School Re-Entry topic folder.
For additional information about the ECHO, slides and resources from all sessions can be found on our website
FUN Virtual Activities for Kids and Adults
FUN Virtual Activities and Experiences for Kids (and Adults!)
- Space Place
NASA Science
- Solar System Exploration
NASA Science
Virtual Museum Tours
- Google Arts and Culture – List of Virtual Museum Tours
View by all, an alphabetical list, and a by location.
Virtual Zoo Visits
- Houston ZooCam
- Loggerhead MarineLife Center
- Monterey Bay Aquarium Live
- National Aquarium Baltimore, MD
- New England Aquarium
- San Diego Zoo
- Cincinnati Zoo – Home Safari Resources
National Parks – Virtual Tours
Hand Washing and Other Precautions
Hand Washing and other Precautions
- Good Steps to Washing Your Hands-visual support
From the CDC
- What to know about hand washing
A video from the CDC
- Everyone Gets Sick Sometimes: Flu Teaching Story
From Autism Speaks
- Hand Washing is your superpower! Colorful posters!
Young Girl – English | Spanish
Young Boy – English | Spanish
- Don’t Share Your Germs: Social Story About Staying Healthy
From the Autism Society of North Carolina
- Infection Control for Individuals with IDD
A video from the Developmental Disabilities Coalition
Hearing Loss
Hearing Loss / Deafness
- At-Home Resources for Communicating during COVID-19
A lit of tips and resources from the UW Health Speech and Hearing clinic.
- How Do I Communicate with Doctors, Nurses, and Staff at the Hospital During COVID-19?
From the Hearing Loss Association of America – This guide is to help you get ready for your hospital visit.
- Free VRI Instructions
Free video interpreting for COVID-19 testing – Getting tested for COVID-19 is a stressful experience and we want to ensure that you have access to interpreting services during this time. Linguabee is offering VRI for free at the test sites.
- COVID-19 Hearing Loss Resources – NCDHHS
Communication Guide with your Deaf, Hard of Hearing or DeafBlind Patients. Communication Access Guide at the Hospital During COVID-19.
- COVID-19: Deaf and Hard of Hearing Communication Access Recommendations for the Hospital
From the National Association of the Deaf
Legislation and Policy Issues Related to COVID-19
Legislation and Policy Issues Related to COVID-19
- Small Victories, but Stimulus Bill Overlooks Many Critical Needs of People with Disabilities
From The Arc. Notes lack of funding for in-home support services, no paid time off for family caregivers, and other critical issues. - The Families First Coronavirus Response Act: Summary of Key Provisions
From the Kaiser Foundation. Includes information about paid sick and medical leave, health insurance, and a range of other family-related issues. - HHS Warns States Not To Put People With Disabilities At The Back Of The Line For Care
Story from NPR - OCR Bulletin: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)
- Recognizing people with disabilities in the COVID-19 pandemic
From the Research and Training Center on Disability in Rural Communities
University of Wisconsin and Government COVID-19 Resources
University and Governmental COVID-19 Resources
Waisman Employee Information and Resources
Waisman Center Employee Information and Resources
- Guide for managing fears and anxiety related to COVID-19
- COVID-19 Information for NIH Applicants and Recipients
Due to the potential exceptional impact of COVID-19 on the research community, NIH is providing updated guidance and information as it becomes available to help you stay healthy and safe while continuing your research.
Wisconsin COVID-19 Resources
Wisconsin COVID-19 Resources
- All in for Kids
Empowering Families Through the Children’s Long-Term Support Waiver Program – COVID-19 Issues
- COVID-19 Resources
Wisconsin Department of Health Services
- NAMI Wisconsin Resources
Wisconsin National Alliance on Mental Illness
- Disability Rights Wisconsin
A non-profit organization that protects the rights of people with disabilities statewide.
- COVID-19: Medicaid / ForwardHealth Program Updates
Learn what resources are available / modified during the epidemic
- Resources for the COVID-19 Public Health Emergency
Wisconsin FACETS – Special Education Support
- 211 Wisconsin
Please select your county from the list to see specific guidance and resources for your region. Included financial resources information.
- Covering Wisconsin
To connect Wisconsin residents with appropriate insurance coverage and other programs that support health, and to promote effective use of these programs. Call about job loss and insurance issues.
- Wisconsin Community Action Coalitions
Find your local CAP office for local resources
- Aging and Disability Resource Centers (ADRC) – Wisconsin – Find your local ADRC
During the COVID-19 pandemic, ADRCs continue to provide community members with information, assistance, and counseling related to long-term care and other programs and services for older adults and adults with disabilities. Contact your local ADRC by telephone to initiate services. To protect the health and safety of customers and staff, in-person office hours and home visits are currently limited at most locations.
- Well Badger COVID-19
Well Badger specializes in information and referrals for health care services and resources including WIC, BadgerCare Plus, Wisconsin Well Woman, services for children and youth with special health care needs, mental health services, and many more.
- Wisconsin County Human Service Association – WCHSA
COVID-19 resources related to county human services offices.
- Wisconsin Community Program, Social Service, and Human Service Agencies
Find your local county program and learn what they provide
- Wisconsin Resources Organizations | pdf
A curated list of health and disability-related organization in Wisconsin