COVID-19: Full List of Resources and Updates

About COVID-19: Children and Adults with Developmental Disabilities

• Coronavirus Social Story
  An online flip book explaining Coronavirus in plain language from The Autism Partnership of Easterseals Chicago.
• Dealing with COVID-19
  Curated resources for those working with individuals who have developmental disabilities
• My Hero is You - How children can help fight COVID-19
  This book was a project developed by the Inter-Agency Standing Committee Reference Group on Mental Health and Psychosocial Support in Emergency Settings (IASC MHPSS RG). The project was supported by global, regional and country based experts in addition to parents, caregivers, teachers and children in 104 countries. Available in multiple languages: My Hero is You: all language versions
• Green Mountain Self-advocates for individuals with ID/DD | Spanish
  This resource is an 8-page booklet about the Coronavirus written in plain language. It was created by and for people with developmental disabilities.
• What Should the Autism Community Know about COVID-19
  From Autism Speaks
• COVID-19 Resource Toolkit
  From Wisconsin Board for People with Developmental Disabilities
• What do Older Adults and People with Disabilities Need to Know?
  U.S. Department of Health and Human Services, Administration for Community Living
• COVID-19 and Rural People with Disabilities
  From the Research & Training Center on Disability in Rural Communities
• COVID-19 and kids: How mRNA vaccines work - Video | Espanol
  American Academy of Pediatrics

About COVID-19: For Parents and Caregivers

• Preparing for Emergencies
  From Family Voices of Wisconsin

• COVID-19: Information for Families of Children and Youth with Special Health Care Needs
  From the American Academy of Pediatrics.

• Coronavirus Information and Resources
  From Family Voices. Advice about what families of children with special health care needs can do.

• COVID-19: effects on children with chronic illnesses
  A video from Children’s Hospital Colorado

• Resources Specific to COVID-19
  From the Catalyst Center. Includes a Medicaid toolkit, frequently asked questions about Medicaid and the Children’s Health Insurance Program, coverage and benefits information, and additional links.

• COVID-19 Information & Resources
  A resource list from the Society for Developmental and Behavioral Pediatrics

• COVID-19 Projections
  This website from the University of Washington, uses a predictive model to estimate key data points related to the COVID 19 timeline by country and state.

• Understanding Coronavirus (COVID-19)
  A comprehensive set of articles and some videos for parents of children of all ages. From KidsHealth at The Nemours Foundation

• Talking with children about Coronavirus Disease 2019
  Messages for parents, school staff, and others working with children - From the CDC

• Coronavirus (COVID-19): Caring for Kids With Special Health Needs
  From KidsHealth at The Nemours Foundation

• Kids and COVID-19: What Parents Should Know
  From Yale Medicine

• 5 Things Everyone Should Know About the Coronavirus Outbreak
  While news about the coronavirus has been evolving, doctors says the best advice is to follow public health directives and take care of yourself.  From Yale Medicine

• Supporting Families During COVID-19 | Spanish
  Includes sections on calming anxiety and coping skills and autism resources. From the Child Mind Institute

• COVID-19: Information for Families of Children and Youth with Special Health Care Needs
  From American Academy of Pediatrics Council on Children with Disabilities

• COVID-19 Resources for People With Disabilities, Families, and Service Providers
  The Arc is greatly concerned about the threat of COVID-19 to people with disabilities, their families, and the workforce that supports them.

American Sign Language Resources

• COVID-19 ASL
  From the CDC – Centers for Disease Control

• Information for the Deaf Community about COVID-19/Coronavirus
  From Communication Service for the Deaf, Inc.

• A Message from the NAD About Coronavirus (COVID-19)
  Plus resources and links from the National Council of the Deaf

Augmentative & Alternative Communication Resources

• Social Stories for Augmentative and Alternative Communication (AAC)
  “Everyone is Worried about Getting Sick. What Can I Do?”

• Supporting Communication with Patients who have COVID-19
  Free resources for patients who are intubated and cannot speak

• Coronavirus Vocabulary for Boardmakers (AAC)

• COVID-19 Communication Rights Toolkit
  From Communication First

Civil Rights / Equal Access to Care

• HHS Warns States Not To Put People With Disabilities At The Back Of The Line For Care
  Story from NPR

• OCR Bulletin: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)

• DRW Open Letter to Providers on Healthcare Rationing
  From Disability Rights Wisconsin

• Who will be left out if COVID-19 medical resources fall short?
  Talk of rationing sparks apprehension for people with disabilities

• Protect Rights of People with Disabilities During COVID-19
  From Human Rights Watch

• The Disability Community Fights Deadly Discrimination Amid The COVID-19 Pandemic
  From Forbes Magazine

• Preventing Discrimination in the Treatment of COVID-19 Patients
  The Illegality of Medical Rationing on the Basis of Disability - From DREDF

• COVID-19 Communication Rights Toolkit
  From Communication First

Coping: Helping Children and Adults with Developmental Disabilities

• Anxiety, Autism: Five Prime Suspects
  With tips for coping at home during the Coronavirus oubreak - From the Autism Research Institute

• How to talk to your child with ASD about frightening situations
  From Autism Speaks

• Supporting Individuals with Autism through Uncertain Times
  From Autism Focused Intervention Resources

• How to Ease Children’s Anxiety About COVID-19
  From NAMI – The National Alliance on Mental Illness

• Helping Children Cope with Emergencies
  From the CDC

• Coping After a Disaster
  A Ready Wrigley activity book for children age 3-10

• Talking With Children: Tips for Caregivers, Parents, and Teachers During Infectious Disease Outbreaks | Spanish
  From SAMHSA – Substance Abuse and Mental Health Services Administration

Coping / Mental Health Support for Parents and Caregivers

• Finding Your NEW NORMAL during COVID-19
  Free online training for caregivers and providers

• Coping With Coronavirus: Managing Stress, Fear, and Anxiety
  From the NIH, National Institute of Mental Health

• Daily Life and Coping
  CDC – Centers for Disease Control

• Virtual Parent Support Group
  Sign up online for free

• The Healthy Minds Program | Free
  Translating pioneering neuroscience into tools for everyday life, our unique framework guides you through the four pillars of the science of training the mind.

• Coping with COVID-19 | pdf
  From NAMI – The  National Alliance on Mental Illness

• How to Protect Your Mental Health during the Coronavirus Outbreak
  From NAMI – The  National Alliance on Mental Illness

• Mental Health Considerations during COVID-19 Outbreak | pdf
  From WHO – The World Health Organization

• How To Cope With Sheltering in Place | Spanish
  From SAMHSA – Substance Abuse and Mental Health Services Administration

• Tips for Survivors: Coping With Grief After a Disaster or Traumatic Event
  From SAMHSA – Substance Abuse and Mental Health Services Administration

• Coping with Stress During Infectious Disease Outbreaks | Spanish
  From SAMHSA – Substance Abuse and Mental Health Services Administration

• COVID-19 Resources
  From the American Psychological Association

• Coronavirus Anxiety – Helpful Expert Tips and Resources
  A comprehensive set of links from the Anxiety and Depression Association of America (ADAA)

COVID-19 Vaccine Information for People with DD

COVID-19 Vaccines
A range of information about the vaccines, rollout, and more from the Centers for Disease Control

COVID-19 Vaccines
From the US FDA

COVID-19: Vaccine
From the Wisconsin Department of Health Services

Plain Language Vaccine Resources
Wisconsin Board for People with Developmental Disabilities

Frequently Asked Questions about COVID-19 Vaccination (CDC)
From the Centers for Disease Control

Toolkit for People with Disabilities
From the Centers for Disease Control

Disability Information and Access Line (DIAL)
The Disability Information and Access Line (DIAL) is now available to help people with disabilities, including Deaf persons, get vaccinated.

Diagnosis Specific Resources

Autism

• Connect to Protect
  Resources from the Autism Society

Down Syndrome

• Intellectual and Developmental Disability COVID-19 Vaccination Position Statement
  From the Down Syndrome Medical Interest Group – USA
• COVID-19 & Down Syndrome Resource
  National Task Group on Intellectual Disabilities and Dementia Practices

Fragile X Syndrome

• Information About COVID-19 for Fragile X Syndrome Patients
  From Fragile X News Today

Rett Syndrome

• COVID-19 Message for the Rett Community
  From RettSyndrome.Org

Education Resources for Students with Disabilities

Supporting Children with Disabilities at Home

• Tips for Families in Supporting Their Children with Disabilities | Spanish | pdf
  In Virtual Formats from the Florida Inclusion Network.

• Helping students with special needs cope and learn during COVID-19 pandemic
  Maine teacher offers helpful tips for parents of kids with special needs amid the COVID-19 pandemic.

• Educating All Learners Alliance (EALA)
  A group dedicated to equity and aimed at providing resources that students with disabilities need.

Policy Information

• Supplemental Fact Sheet Addressing the Risk of COVID-19 in Preschool, Elementary and Secondary Schools While Serving Children with Disabilities
  From the US Department of Education

• Questions and Answers on Providing Services to Children with Disabilities During the Coronavirus Disease 2019 Outbreak
  From the US Department of Education

• Webinar and fact sheet for protecting students’ civil rights during COVID-19 response
  From the US Department of Education

• Resources on accessibility, distance learning options for students with disabilities during COVID-19 emergency
  From the US Department of Education

• Provision of Special Education, Early Intervention, and 504 Services During the Coronavirus 2019 Outbreak
  From AOTA – American Occupational Therapy Association

• Wisconsin DPI – Information on COVID-19

• Wisconsin DPI updates guidance for districts during COVID-19 school closures

• Resources to Assist with Virtual Learning for Students on Alternate Standards

COVID-19 Resources for Returning to School

Wisconsin Resources

• 10 top priorities for safe return to school for children with complex health needs
  From a collaborative of Wisconsin health-related resources
• Supporting Safe In-Person Learning
  Wisconsin Department of Public Instruction
• COVID-19 Information for School Health Services
  Wisconsin Department of Public Instruction
• COVID-19: Birth to 3 Program Operational Questions and Answers
• COVID-19: Schools and Child Care
  Wisconsin Department of Health Services

Nation-Wide Resources

• Going Back to School During COVID-19: News and Updates
  From the National Education Association
• Is School Safe? Will Districts Test For COVID-19? Answering Back-To-School Questions
  From National Public Radio
• Serving Special Needs Students During COVID-19: A Rural Educator's Story
  From EdWeek
• School openings across globe suggest ways to keep coronavirus at bay, despite outbreaks
  From Science Magazine
• How schools across the globe are reopening amid the coronavirus pandemic
  Some schools in rural parts of America have also reopened with new restrictions. - From EdSources
• School Decision-Making Tool for Parents, Caregivers, and Guardians
  From the Centers for Disease Control
• COVID-19 Planning Considerations: Guidance for School Re-entry
  From the American Academy of Pediatrics
• COVID-19: Special Education and Service Delivery
  The resources and guidance listed below, from the National Association of School Psychologists - NASP, the federal government, and other agencies, may be helpful for school psychologists in determining how to continue offering services to students with disabilities as required by the Individuals with Disabilities Education Act (IDEA) during the COVID-19 outbreak.
• What will a return to school during the COVID-19 pandemic look like? - What parents need to know about school reopening in the age of coronavirus.
  From UNICEF
• Considerations for Post COVID Return to School for Students with Disabilities and Special Healthcare Needs
  From the National Association of School Nurses
• Coronavirus Disease Updates
  From the National Association of School Nurses
• Resources for Schools
  • Oregon Department of Health and Oregon Health Authority - Ready Schools, Safe Learners: Guidance for School Year 2020-21
  • WI Department of Public Instruction Additional Services due to Extended School Closures
• Resources for Families
  • Florida Back-to-School Checklist For Families– English, Spanish
  • AAP’s HealthChildren.Org Return to School During COVID-19
• General COVID Information and Nationwide Tracking
  • Johns Hopkins University eSchool+ Initiative Analysis of School Reopening Plans
  • COVID Risk Levels Dashboard
  • W.H.O. to Review Evidence of Airborne Transmission of Coronavirus

FUN Virtual Activities and Experiences for Kids (and Adults!)

• STEM Activities for Students
  NASA

• Space Place
  NASA Science

• Solar System Exploration
  NASA Science

• Genes in Space

• Tour National Parks From Your Couch

Virtual Museum Tours

• Google Arts and Culture - List of Virtual Museum Tours
  View by all, an alphabetical list, and a by location.

Virtual Zoo Visits

• Houston ZooCam
• Loggerhead MarineLife Center
• Monterey Bay Aquarium Live
• National Aquarium Baltimore, MD
• New England Aquarium
• San Diego Zoo
• Cincinnati Zoo - Home Safari Resources

National Parks - Virtual Tours

• Virtual Visits | National Park Foundation
• Find Your Virtual National Park

Hand Washing and other Precautions

• Good Steps to Washing Your Hands-visual support
  From the CDC

• What to know about hand washing
  A video from the CDC

• Everyone Gets Sick Sometimes: Flu Teaching Story
  From Autism Speaks

• Hand Washing is your superpower! Colorful posters!
  Young Girl - English | Spanish
  Young Boy - English | Spanish

• Don’t Share Your Germs: Social Story About Staying Healthy
  From the Autism Society of North Carolina

• Infection Control for Individuals with IDD
  A video from the Developmental Disabilities Coalition

Hearing Loss / Deafness

• At-Home Resources for Communicating during COVID-19
  A lit of tips and resources from the UW Health Speech and Hearing clinic.

• How Do I Communicate with Doctors, Nurses, and Staff at the Hospital During COVID-19?
  From the Hearing Loss Association of America - This guide is to help you get ready for your hospital visit.

• Free VRI Instructions
  Free video interpreting for COVID-19 testing - Getting tested for COVID-19 is a stressful experience and we want to ensure that you have access to interpreting services during this time. Linguabee is offering VRI for free at the test sites.

• COVID-19 Hearing Loss Resources - NCDHHS
  Communication Guide with your Deaf, Hard of Hearing or DeafBlind Patients. Communication Access Guide at the Hospital During COVID-19.

• COVID-19: Deaf and Hard of Hearing Communication Access Recommendations for the Hospital
  From the National Association of the Deaf

Legislation and Policy Issues Related to COVID-19

• Small Victories, but Stimulus Bill Overlooks Many Critical Needs of People with Disabilities
  From The Arc. Notes lack of funding for in-home support services, no paid time off for family caregivers, and other critical issues.
• The Families First Coronavirus Response Act: Summary of Key Provisions
  From the Kaiser Foundation. Includes information about paid sick and medical leave, health insurance, and a range of other family-related issues.
• HHS Warns States Not To Put People With Disabilities At The Back Of The Line For Care
  Story from NPR
• OCR Bulletin: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)
• Recognizing people with disabilities in the COVID-19 pandemic
  From the Research and Training Center on Disability in Rural Communities

University and Governmental COVID-19 Resources

• Wisconsin – Accessible Explanation of Stay at Home order (in English and Spanish)
• Wisconsin Department of Health Services Updates
• UW–Madison research community responds to COVID-19
• Dane County – COVID-19 Data – Dash Board
• UW-Madison Campus Updates
• UW Health Updates

Waisman Center Employee COVID-19 Information and Resources

• UW-Madison COVID-19 Dashboard
  This dashboard provides information to the campus community and the public about the results of COVID-19 tests among current UW–Madison faculty, staff and students.
• Campus COVID-19 Testing
  Details about campus no-cost COVID-19 testing: accessing testing, preparing for testing, getting your results and what to do if you test positive.
• COVID-19 vaccine information
  University Health Services will begin vaccinating eligible members of the campus community under the state’s COVID-19 vaccination program.
• COVID-19 Pandemic Employee Work Location and Leave Policy
• Office of Human Resources

• Technology for working remotely – kb.wisc.edu

• Guide for managing fears and anxiety related to COVID-19

• Confidential counseling and consultation

• Resources for working remotely

• Tips for organizational effectiveness at a distance

• Overcoming the Disorientation of Telecommuting

• COVID-19 Information for NIH Applicants and Recipients
  Due to the potential exceptional impact of COVID-19 on the research community, NIH is providing updated guidance and information as it becomes available to help you stay healthy and safe while continuing your research.

Wisconsin COVID-19 Resources

• All in for Kids
  Empowering Families Through the Children's Long-Term Support Waiver Program - COVID-19 Issues

• COVID-19 Resources
  Wisconsin Department of Health Services

• COVID-19: Resources for Parents and Guardians
  Wisconsin Department of Health Services

• NAMI Wisconsin Resources
  Wisconsin National Alliance on Mental Illness

• Disability Rights Wisconsin
  A non-profit organization that protects the rights of people with disabilities statewide.

• COVID-19: Medicaid / ForwardHealth Program Updates
  Learn what resources are available / modified during the epidemic

• Resources for the COVID-19 Public Health Emergency
  Wisconsin FACETS - Special Education Support

• 211 Wisconsin
  Please select your county from the list to see specific guidance and resources for your region. Included financial resources information.

• Covering Wisconsin
  To connect Wisconsin residents with appropriate insurance coverage and other programs that support health, and to promote effective use of these programs. Call about job loss and insurance issues.

• Wisconsin Community Action Coalitions
  Find your local CAP office for local resources

• Aging and Disability Resource Centers (ADRC) - Wisconsin - Find your local ADRC
  During the COVID-19 pandemic, ADRCs continue to provide community members with information, assistance, and counseling related to long-term care and other programs and services for older adults and adults with disabilities. Contact your local ADRC by telephone to initiate services. To protect the health and safety of customers and staff, in-person office hours and home visits are currently limited at most locations.

• Well Badger COVID-19
  Well Badger specializes in information and referrals for health care services and resources including WIC, BadgerCare Plus, Wisconsin Well Woman, services for children and youth with special health care needs, mental health services, and many more.

• Wisconsin County Human Service Association - WCHSA
  COVID-19 resources related to county human services offices.

• Wisconsin Community Program, Social Service, and Human Service Agencies
  Find your local county program and learn what they provide

• Wisconsin Resources Organizations | pdf
  A curated list of health and disability-related organization in Wisconsin