COVID-19: Full List of Resources and Updates

About COVID-19: Children and Adults with Developmental Disabilities

• Dealing with COVID-19
  Curated resources for those working with individuals who have developmental disabilities
• What Should the Autism Community Know about COVID-19
  From Autism Speaks
• COVID-19 Resource Toolkit
  From Wisconsin Board for People with Developmental Disabilities
• What do Older Adults and People with Disabilities Need to Know?
  U.S. Department of Health and Human Services, Administration for Community Living
• COVID-19 and Rural People with Disabilities
  From the Research & Training Center on Disability in Rural Communities
• COVID-19 and kids: How mRNA vaccines work - Video | Espanol
  American Academy of Pediatrics

About COVID-19: For Parents and Caregivers

• COVID-19: Information for Families of Children and Youth with Special Health Care Needs
  From the American Academy of Pediatrics.

• Coronavirus Information and Resources
  From Family Voices. Advice about what families of children with special health care needs can do.

• Talking with children about Coronavirus Disease 2019
  Messages for parents, school staff, and others working with children - From the CDC

• 5 Things Everyone Should Know About the Coronavirus Outbreak
  While news about the coronavirus has been evolving, doctors says the best advice is to follow public health directives and take care of yourself.  From Yale Medicine

• Supporting Families During COVID-19 | Spanish
  Includes sections on calming anxiety and coping skills and autism resources. From the Child Mind Institute

• COVID-19: Information for Families of Children and Youth with Special Health Care Needs
  From American Academy of Pediatrics Council on Children with Disabilities

• COVID-19 Resources for People With Disabilities, Families, and Service Providers
  The Arc is greatly concerned about the threat of COVID-19 to people with disabilities, their families, and the workforce that supports them.

American Sign Language Resources

• COVID-19 ASL
  From the CDC – Centers for Disease Control

• Information for the Deaf Community about COVID-19/Coronavirus
  From Communication Service for the Deaf, Inc.

• A Message from the NAD About Coronavirus (COVID-19)
  Plus resources and links from the National Council of the Deaf

Augmentative & Alternative Communication Resources

• Supporting Communication with Patients who have COVID-19
  Free resources for patients who are intubated and cannot speak

• Coronavirus Vocabulary for Boardmakers (AAC)

• COVID-19 Communication Rights Toolkit
  From Communication First

Civil Rights / Equal Access to Care

• Civil Rights and COVID-19
  Office for Civil Rights Headquarters, U.S. Department of Health & Human Services

• What You Should Know About COVID-19 and the ADA, the Rehabilitation Act, and Other EEO Laws
  U.S. Equal Employment Opportunity Commission
• HHS Warns States Not To Put People With Disabilities At The Back Of The Line For Care
  Story from NPR

• OCR Bulletin: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)

• DRW Open Letter to Providers on Healthcare Rationing
  From Disability Rights Wisconsin

• Who will be left out if COVID-19 medical resources fall short?
  Talk of rationing sparks apprehension for people with disabilities

• Protect Rights of People with Disabilities During COVID-19
  From Human Rights Watch

• The Disability Community Fights Deadly Discrimination Amid The COVID-19 Pandemic
  From Forbes Magazine

• Preventing Discrimination in the Treatment of COVID-19 Patients
  The Illegality of Medical Rationing on the Basis of Disability - From DREDF

• COVID-19 Communication Rights Toolkit
  From Communication First

Coping: Helping Children and Adults with Developmental Disabilities

• Anxiety, Autism: Five Prime Suspects
  With tips for coping at home during the Coronavirus oubreak - From the Autism Research Institute

• How to Ease Children’s Anxiety About COVID-19
  From NAMI – The National Alliance on Mental Illness

• Helping Children Cope with Emergencies
  From the CDC

• Coping After a Disaster
  A Ready Wrigley activity book for children age 3-10

• Talking With Children: Tips for Caregivers, Parents, and Teachers During Infectious Disease Outbreaks | Spanish
  From SAMHSA – Substance Abuse and Mental Health Services Administration

Coping / Mental Health Support for Parents and Caregivers

• Finding Your NEW NORMAL during COVID-19
  Free online training for caregivers and providers

• Coping With Coronavirus: Managing Stress, Fear, and Anxiety
  From the NIH, National Institute of Mental Health

• Daily Life and Coping
  CDC – Centers for Disease Control

• The Healthy Minds Program | Free
  Translating pioneering neuroscience into tools for everyday life, our unique framework guides you through the four pillars of the science of training the mind.

• Coping with COVID-19 | pdf
  From NAMI – The  National Alliance on Mental Illness

• Tips for Survivors: Coping With Grief After a Disaster or Traumatic Event
  From SAMHSA – Substance Abuse and Mental Health Services Administration

• Coping with Stress During Infectious Disease Outbreaks | Spanish
  From SAMHSA – Substance Abuse and Mental Health Services Administration

• COVID-19 Resources
  From the American Psychological Association

• Coronavirus Anxiety – Helpful Expert Tips and Resources
  A comprehensive set of links from the Anxiety and Depression Association of America (ADAA)

COVID-19 Vaccine Information for People with DD

• COVID-19 Vaccines for Children 6 Months to 17 Years | PDF
  The COVID-19 vaccine is a safe way to protect your child, your family, and others from COVID-19. So, get it as soon as possible!
• The COVID-19 Vaccine - Fact Sheet and FAQs | PDF
  People with disabilities are at higher risk for getting sick from COVID-19. It is important that people with disabilities, their families, and their support staff get the vaccine so that everyone is protected.
• Autism Society of America's Vaccine Education Initiative
  The VEI aims to increase vaccine education, confidence, and access through grassroots efforts.
• Will’s story: Promoting Vaccine Confidence in Adults with Intellectual and Developmental Disabilities
  The CDC recommends vaccination against COVID-19 for everyone 5 years and older. However, some adults with intellectual and developmental disabilities still have questions about vaccine safety. In this video, an adult with Down syndrome shares his initial hesitation and the steps he took to educate himself.

• COVID-19 Vaccines
  A range of information about the vaccines, rollout, and more from the Centers for Disease Control
• COVID-19 Vaccines
  From the US FDA
• COVID-19: Vaccine
  From the Wisconsin Department of Health Services
• Plain Language Vaccine Resources
  Wisconsin Board for People with Developmental Disabilities
• Frequently Asked Questions about COVID-19 Vaccination (CDC)
  From the Centers for Disease Control
• Toolkit for People with Disabilities
  From the Centers for Disease Control
• Disability Information and Access Line (DIAL)
  The Disability Information and Access Line (DIAL) is now available to help people with disabilities, including Deaf persons, get vaccinated.

Diagnosis Specific Resources

Autism

• Connect to Protect
  Resources from the Autism Society

Down Syndrome

• Intellectual and Developmental Disability COVID-19 Vaccination Position Statement
  From the Down Syndrome Medical Interest Group – USA
• COVID-19 & Down Syndrome Resource
  National Task Group on Intellectual Disabilities and Dementia Practices

Education Resources for Students with Disabilities

Policy Information

• COVID-19 Resources for Schools, Students, and Families

• Long COVID under Section 504 and the IDEA: A Resource to Support Children, Students, Educators, Schools, Service Providers, and Families

• ED releases letter with updated COVID-19 guidance and resources for schools and students with disabilities

• Wisconsin DPI – Information on COVID-19

COVID-19 Resources for Returning to School

Wisconsin Resources

• 10 top priorities for safe return to school for children with complex health needs
  From a collaborative of Wisconsin health-related resources
• Supporting Safe In-Person Learning
  Wisconsin Department of Public Instruction
• COVID-19 Information for School Health Services
  Wisconsin Department of Public Instruction
• COVID-19: Birth to 3 Program Operational Questions and Answers
• COVID-19: Schools and Child Care
  Wisconsin Department of Health Services

Nation-Wide Resources

• Going Back to School During COVID-19: News and Updates
  From the National Education Association
• School Decision-Making Tool for Parents, Caregivers, and Guardians
  From the Centers for Disease Control
• COVID-19: Special Education and Service Delivery
  The resources and guidance listed below, from the National Association of School Psychologists - NASP, the federal government, and other agencies, may be helpful for school psychologists in determining how to continue offering services to students with disabilities as required by the Individuals with Disabilities Education Act (IDEA) during the COVID-19 outbreak.
• Coronavirus Disease Updates
  From the National Association of School Nurses
• Resources for Schools
  • Oregon Department of Health and Oregon Health Authority - Ready Schools, Safe Learners: Guidance for School Year 2020-21
• Resources for Families
  • Florida Back-to-School Checklist For Families– English, Spanish
  • AAP’s HealthChildren.Org Return to School During COVID-19
• General COVID Information and Nationwide Tracking
  • COVID Risk Levels Dashboard

FUN Virtual Activities and Experiences for Kids (and Adults!)

• STEM Activities for Students
  NASA

• Space Place
  NASA Science

• Solar System Exploration
  NASA Science

• Genes in Space

• Tour National Parks From Your Couch

Virtual Museum Tours

• Google Arts and Culture - List of Virtual Museum Tours
  View by all, an alphabetical list, and a by location.

Virtual Zoo Visits

• Houston ZooCam
• Loggerhead MarineLife Center
• Monterey Bay Aquarium Live
• National Aquarium Baltimore, MD
• New England Aquarium
• San Diego Zoo
• Cincinnati Zoo - Home Safari Resources

National Parks - Virtual Tours

• Virtual Visits | National Park Foundation
• Find Your Virtual National Park

Hand Washing and other Precautions

• Good Steps to Washing Your Hands-visual support
  From the CDC

• What to know about hand washing
  A video from the CDC

• Everyone Gets Sick Sometimes: Flu Teaching Story
  From Autism Speaks

• Hand Washing is your superpower! Colorful posters!
  Young Girl - English | Spanish
  Young Boy - English | Spanish

• Don’t Share Your Germs: Social Story About Staying Healthy
  From the Autism Society of North Carolina

• Infection Control for Individuals with IDD
  A video from the Developmental Disabilities Coalition

Hearing Loss / Deafness

• At-Home Resources for Communicating during COVID-19
  A lit of tips and resources from the UW Health Speech and Hearing clinic.

• How Do I Communicate with Doctors, Nurses, and Staff at the Hospital During COVID-19?
  From the Hearing Loss Association of America - This guide is to help you get ready for your hospital visit.

• Free VRI Instructions
  Free video interpreting for COVID-19 testing - Getting tested for COVID-19 is a stressful experience and we want to ensure that you have access to interpreting services during this time. Linguabee is offering VRI for free at the test sites.

• COVID-19 Hearing Loss Resources - NCDHHS
  Communication Guide with your Deaf, Hard of Hearing or DeafBlind Patients. Communication Access Guide at the Hospital During COVID-19.

• COVID-19: Deaf and Hard of Hearing Communication Access Recommendations for the Hospital
  From the National Association of the Deaf

Legislation and Policy Issues Related to COVID-19

• COVID-19 Resources for Policymakers
  US Office of Disability Employment Policy
• Administration Announces New Actions to Address the Needs of People with Disabilities and Older Adults in Response to and Recovery from COVID-⁠19
  White House Fact Sheet
• Economic Legislation Should Include Key Measures for People With Disabilities
  Center on Budget and Policy Priorities
• Covid 19: Federal Disability-Specific And Other Related Guidance
  The Council of State Governments
• OCR Bulletin: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)
• Recognizing people with disabilities in the COVID-19 pandemic
  From the Research and Training Center on Disability in Rural Communities

University and Governmental COVID-19 Resources

• Wisconsin Department of Health Services Updates
• UW–Madison research community responds to COVID-19
• Dane County – COVID-19 Data
• UW-Madison Campus Updates
• UW Health Updates

Waisman Center Employee COVID-19 Information and Resources

• UW-Madison COVID-19 Dashboard
  This dashboard provides information to the campus community and the public about the results of COVID-19 tests among current UW–Madison faculty, staff and students.
• Campus COVID-19 Testing
  Details about campus no-cost COVID-19 testing: accessing testing, preparing for testing, getting your results and what to do if you test positive.
• COVID-19 vaccine information
  University Health Services will begin vaccinating eligible members of the campus community under the state’s COVID-19 vaccination program.
• Office of Human Resources

• Confidential counseling and consultation

Wisconsin COVID-19 Resources

• COVID-19 Resources
  Wisconsin Department of Health Services

• COVID-19: Resources for Parents and Guardians
  Wisconsin Department of Health Services

• NAMI Wisconsin Resources
  Wisconsin National Alliance on Mental Illness

• Disability Rights Wisconsin
  A non-profit organization that protects the rights of people with disabilities statewide.

• COVID-19: Medicaid / ForwardHealth Program Updates
  Learn what resources are available / modified during the epidemic

• 211 Wisconsin
  Please select your county from the list to see specific guidance and resources for your region. Included financial resources information.

• Covering Wisconsin
  To connect Wisconsin residents with appropriate insurance coverage and other programs that support health, and to promote effective use of these programs. Call about job loss and insurance issues.

• Wisconsin Community Action Coalitions
  Find your local CAP office for local resources

• Aging and Disability Resource Centers (ADRC) - Wisconsin - Find your local ADRC
  During the COVID-19 pandemic, ADRCs continue to provide community members with information, assistance, and counseling related to long-term care and other programs and services for older adults and adults with disabilities. Contact your local ADRC by telephone to initiate services. To protect the health and safety of customers and staff, in-person office hours and home visits are currently limited at most locations.

• Well Badger COVID-19
  Well Badger specializes in information and referrals for health care services and resources including WIC, BadgerCare Plus, Wisconsin Well Woman, services for children and youth with special health care needs, mental health services, and many more.

• Wisconsin Community Program, Social Service, and Human Service Agencies
  Find your local county program and learn what they provide

• Wisconsin Resources Organizations | pdf
  A curated list of health and disability-related organization in Wisconsin