Down Syndrome Clinic

WELCOME

The Waisman Center provides comprehensive clinical care and support for children with disabilities and their families. The Waisman Center Down Syndrome Clinic is a partnership with UW Health and the American Family Children’s Hospital. An interdisciplinary team of professionals works together to provide clinical care of children with a diagnosis of Down syndrome.

Children and their families are seen for initial and follow-up visits to address concerns related to Down syndrome in the areas of: feeding, growth, development, communication, behavior, hearing, therapy and support services. Individualized care is provided according to the needs of the child identified in collaboration with their parent or guardian. The guidelines will be followed from the American Academy of Pediatrics Standards in the Care of Children with Down Syndrome.

YOUR CLINIC VISIT

If you are interested in an appointment, please have your/your child’s primary care provider fill out a referral at uwhealth.org/referral.  We will call you to schedule an appointment once we have processed the referral.

  • This appointment may take up to four hours, so please plan accordingly.
  • All clinic visitors should park in stalls outlined in blue and give their license plate number to the schedulers upon check-in. (See map and directions below.)
  • Our clinic is located on the first floor of the Waisman Center, 1500 Highland Avenue.
  • Plan to arrive 5 to 10 minutes prior to your scheduled appointment. Check in at the clinic reception desk located just beyond the Waisman Center’s main lobby.
  • A medical assistant may obtain your child’s height, weight, pulse and blood pressure. You and your child will be taken to an examination room.
  • A developmental pediatrician or nurse practitioner will obtain a thorough health history, examine your child, discuss the evaluation and answer any questions.
  • Other professionals may also provide evaluations and/or consultations including: a speech pathologist, an audiologist, a geneticist, a dietitian, an occupational therapist, a physical therapist, and social worker.
  • The clinics are a nut-free zone.

NOTE: Full visit information will be shared in writing with you and your child’s primary health care provider, subspecialists, and others as indicated by signed release of information forms.

GOALS OF THE CLINIC TEAM

  • Educate the family about Down syndrome, associated complications and the genetic cause.
  • Detect and treat problems related to Down syndrome.
  • Provide health care counseling about potential risks and preventive behaviors.
  • Refer and collaborate with other health professionals to meet your child’s special needs.
  • Provide information on community resources and services to support your child and family.
  • Support and advocate for the patient and family.

Clinic Team

Clinic Director

Maria Stanley, MD

Position title: Developmental Behavioral Pediatrician

Clinic Coordinator

Amy Lyle, MSSW

Position title: Social Worker

Nurse

Jean Marie Kammer, RN

Position title: Nurse

Clinic Team

Jaclyn Bender, MS OTR/L

Position title: Occupational Therapist

Jaime Bergh, PsyD, BCBA

Position title: Licensed Psychologist and Board-Certified Behavior Analyst

Kayla Kristensen, MS, CCC-SLP

Position title: Speech-Language Pathologist

Mary Marcus, MS, RDN, CSP, CD

Position title: Dietitian

Rosie Mayo, NPN

Position title: Nurse Practitioner

Lindsey Stanek, PT, DPT

Position title: Physical Therapist

Resources

The Down Syndrome Hub PageBoy with Down syndrome

Find all the Waisman Center activities related to Down syndrome, including research, training, clinics, studies, news articles, events and more.

Maps, Directions, and Parking for Clinic Visitors

Parking MapFrom the east—follow University Avenue through campus and then go off to the right on Campus Drive; stay in the right lane and turn right at the University Bay Drive/Farley Avenue intersection.

From the west—follow University Avenue and turn left at the University Bay Drive/Farley Avenue intersection. After making the turn (from either direction)... Continue straight over the hill; the road at that point becomes Highland Avenue. The Waisman Center is at the bottom of the hill on the left, across the street from UW-Children's Hospital.

PARKING: All clinic visitors should park in stalls outlined in blue and give their license plate number to the schedulers upon check-in.

ENTRANCE: Enter building in north tower at main clinics/lobby doors. Turn right and walk through lobby to clinics registration desk.

Click on map thumbnail to view larger image.

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