University of Wisconsin–Madison

Down Syndrome Clinic

WELCOME

Young boy with Down syndrome with clinicianThe Waisman Center provides comprehensive clinical care and support for children with disabilities and their families. The Waisman Center Down Syndrome Clinic is a partnership with UW Health and the American Family Children’s Hospital. An interdisciplinary team of professionals works together to provide clinical care of children with a diagnosis of Down syndrome.

Children and their families are seen for initial and follow-up visits to address concerns related to Down syndrome in the areas of: feeding, growth, development, communication, behavior, hearing, therapy and support services. Genetic counseling is also provided in the clinic. Individualized care is provided according to the needs of the child identified in collaboration with their parent or guardian. The guidelines will be followed from the American Academy of Pediatrics Standards in the Care of Children with Down Syndrome.

YOUR CLINIC VISIT

If you are interested in an appointment, please have your/your child’s primary care provider fill out a referral at uwhealth.org/referral.  We will call you to schedule an appointment once we have processed the referral.

  • Prior to your appointment, a packet of materials will be sent to you including directions to the Waisman Center.
  • All clinic visitors should park in stalls outlined in blue and give their license plate number to the schedulers upon check-in. (See map and directions on back.)
  • Our clinic is located on the first floor of the Waisman Center, 1500 Highland Avenue. Plan to arrive 20 minutes prior to your scheduled appointment. Check in at the clinic reception desk located just beyond the Waisman Center’s main lobby.
  • A medical assistant may obtain your child’s height, weight, pulse and blood pressure. You and your child will be taken to an examination room.
  • A developmental pediatrician or nurse practitioner will obtain a thorough health history, examine your child, discuss the evaluation and answer any questions.
  • Other professionals may also provide evaluations and/or consultations including: a speech pathologist, an audiologist, a geneticist, a genetic counselor, a dietitian, an occupational therapist, a physical therapist, and social worker.NOTE: Full visit information will be shared in writing with you and your child’s primary health care provider, subspecialists, and others as indicated by signed release of information forms.

GOALS OF THE CLINIC TEAM

  • Educate the family about Down syndrome, associated complications and the genetic cause.
  • Detect and treat problems related to Down syndrome.
  • Provide health care counseling about potential risks and preventive behaviors.
  • Refer and collaborate with other health professionals to meet your child’s special needs.
  • Provide information on community resources and services to support your child and family.
  • Support and advocate for the patient and family.

Clinic Director

Maria Stanley, MD

Developmental Behavioral Pediatrician

Clinic Coordinator

Amy Lyle, MSSW

Family Navigator, Waisman Resource Center

Physicians

Jessica Scott Schwoerer, MD

Clinical Biochemical Geneticist

Clinic Team