Waisman Center Day with the Experts: Down Syndrome

This event has passed.

In Person - At the John D. Wiley Conference Center, Room T216 & Virtual
@ 9:00 am - 11:30 am

14th Annual | In-Person and Virtual

Register Here

Event Details

When: Saturday, March 16, 2024 | 9:00 a.m. – 11:30 a.m.
Refreshments at 8:30 a.m for in-person attendees.
Where: In Person – At the John D. Wiley Conference Center, Room T216
Virtual – Register to obtain Zoom code
About: Learn about advances in research and clinical services and hear from a
panel of experts—individuals with Down syndrome and family members.
Flyer: Click here to download a PDF of the flyer
Registration: Click here to register for the Down Syndrome Day with the Experts
Hosts & Sponsor: Down Syndrome Association of Wisconsin, GiGi’s Playhouse, and Friends of the Waisman Center

Schedule & Program

9:00-9:05 am  Welcome
Maria Stanley, MD, Director, Waisman Center Clinics
9:05-9:30 am
“Sleep Apnea in Children and Adolescents with Down Syndrome”
Camilla Matthews, MD, Associate Professor, Pediatric Pulmonology and Sleep Medicine, Department of Pediatrics
Obstructive sleep apnea in children and adolescents with Down syndrome is extremely common with greater than 50% prevalence. Sleep apnea impacts daytime behavior and alertness, cardiovascular risk factors, pain, immune function, and insulin resistance. This presentation will discuss the causes and symptoms of obstructive sleep apnea as well as testing and treatment options.
9:30-10:00 am
“Obstructive Sleep Apnea”
Tony Kille, MD, Associate Professor, Division of Otolaryngology, Department of Surgery
Mike Puricelli, MD, FACS, FAAP, Assistant Professor, Division of Otolaryngology, Department of Surgery
This presentation discusses the mechanisms that predispose people with Down syndrome to obstructive sleep apnea (OSA) and the impact of untreated obstructive sleep apnea on heath and function. We will discuss the initial approach and management options for OSA in children with Down syndrome as well as typical outcomes, identify treatment options, and expectations for persistent OSA after T&A in children with Down syndrome and explore emerging technologies and techniques for primary prevention and management of complex, persistent OSA.
10:00-10:30 am  
“Supporting Families Through the Use of CPAP” 
Jaclyn Bender, MS, OTR/L, Occupational Therapist, Waisman Center Clinics
Jaime Bergh, PsyD, BCBA, Licensed Psychologist and Board-Certified Behavior Analyst, Waisman Center Clinics
Sherry Schultz, RN, MSN, CDDN, Director, Waisman Center Wellness Inclusion Nursing (WIN)
An individual is recommended to wear a CPAP, but refuses. Now what? Join an interdisciplinary discussion with nursing, psychology, and occupational therapy on ways to improve an individual’s tolerance in wearing a CPAP. Gain an understanding of why wearing a CPAP is challenging for individuals with Down syndrome and learn a few tools to support its use.
10:30-11:30 am
A panel of experts that includes individuals with Down syndrome and family members.


Boy with Down syndrome