The METabolic Health, Lifestyle, and Risk of Co-Occurring Health Conditions in Down Syndrome (MET-DS) study is part of the NIH INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndrome) and its Collaboration for Down Syndrome Progress (CDP) Program—national initiatives working to improve the health and quality of life of people with Down syndrome. The Waisman Center is part of this multi-site study, and results may help researchers find better ways to prevent, detect, and treat health problems in people with Down syndrome earlier, supporting healthier lives.
Specifically, researcher Sigan Hartley, PhD, aims to learn more about how metabolism, lifestyle, and health are connected in youth and young adults with Down syndrome. The Waisman Center is recruiting people with Down syndrome between 6 and 24 years old to participate. Participants need to have a support person, such as a parent or guardian, to complete the study with them and be present at study visits.
Participants take part in study activities at the Waisman Center once a year to help researchers learn more about their health and daily life. Activities include: questionnaires about health, lifestyle, and daily routines; a medical exam; thinking and memory games; giving blood or saliva samples; and sleep and activity tracking.
Families will be paid anywhere from $250-$500 per visit, depending on the activities completed. Accommodations are available for families who live a few hours from the Waisman Center.
Details
Learn more about the study here: https://includecdp.org/
Contact
Please call coordinator Ellen Brandt at 608.265.4571 or email hartleylab@waisman.wisc.edu for additional information. The Waisman Center is located at the University of Wisconsin-Madison.
PI: Sigan Hartley, PhD
Keywords: Down Syndrome, Intellectual and Developmental Disabilities Studies