Advising Research through the Lens of Lived Experience: How Individuals with Disabilities and their Families are Shaping Research

NOTE: Each individual interviewed for this story stated their preference between person-first or identity-first language. The language used reflects the preference of each person. Researchers interviewed use identity-first language in alignment with the preferences of …

A Family’s Committment to Down Syndrome Research at the Waisman Center Spans Four Decades and Counting

When Heather Huismann was in middle school she called the police on her teacher. “He was not teaching me very well,” Heather says. So, she did what her parents taught her to do when there …

Neurodegeneration research at the Waisman Center from gene to organelle to cell to brain

Alzheimer’s disease, Parkinson’s disease, amyotrophic lateral sclerosis (ALS), Charcot-Marie-Tooth disease, and retinitis pigmentosa all have different manifestations and affect different body functions, but they are all connected by one mechanism: neurodegeneration.

Waisman postdoctoral training program: Training the next generation of IDD researchers

The first two years of the grant provided funding for two seminars in an academic year, but in a short span, seeing the tangible benefits these had, they expanded from two lectures a year, to two a month.

Thoughts of gratitude: The Dewey family is a catalyst of support for the Waisman Center

Individuals with Down syndrome are at higher risk of developing Alzheimer’s disease, and it typically presents it at an earlier age than the general population. It is estimated that 90% of people with Down syndrome will have developed Alzheimer’s by age 65.