Down Syndrome Day with the Experts Archives

Beginning in 2010, this collaboration with the Down Syndrome Association of Wisconsin-South Central (DSAW) — formerly the Madison Area Down Syndrome Society (MADSS) — and GiGi’s Playhouse Madison, focuses on sharing knowledge about Down syndrome across the life course, from research using stem cells to the latest standards of care. A panel of experts made up of individuals with Down syndrome and their family members share insights and information.

Document and Video Archive

2024 | Program & Schedule (pdf)

“Sleep Apnea in Children and Adolescents with Down Syndrome”
Camilla Matthews, MD, Associate Professor, Pediatric Pulmonology and Sleep Medicine, Department of Pediatrics
Video | PDF of PowerPoint
“Obstructive Sleep Apnea”
Tony Kille, MD, Associate Professor, Division of Otolaryngology, Department of Surgery
Mike Puricelli, MD, FACS, FAAP, Assistant Professor, Division of Otolaryngology, Department of Surgery
Video | PDF of Powerpoint
“Supporting Families Through the Use of CPAP” 
Jaclyn Bender, MS, OTR/L, Occupational Therapist, Waisman Center Clinics
Jaime Bergh, PsyD, BCBA, Licensed Psychologist and Board-Certified Behavior Analyst, Waisman Center Clinics
Sherry Schultz, RN, MSN, CDDN, Director, Waisman Center Wellness Inclusion Nursing (WIN)
Video | PDF of Powerpoint
Community Panel

2023 | Program & Schedule (pdf)

“Lifestyle and Alzheimer’s Disease in Down Syndrome” 
Sigan Hartley, PhD, Professor, Human Ecology and Waisman Investigator
Video | PowerPoint
“The Future of Prevention and Treatment of Alzheimer’s Disease in Down Syndrome”
Brad Christian, PhD, Professor, Medical Physics and Psychiatry, Associate Director, Waisman Center
Video | PowerPoint
“The Road to Adulthood: A Brief Exploration of Youth to Adult Transition”
Julie Hajewski, MSN, A-NP, APNP, Wisconsin Youth Health Transition Initiative, Provider Education &
Amy Lyle, MSSW, Senior Clinical Social Worker, Clinic Coordinator, Down Syndrome Clinic
Video | PowerPoint
Community Panel

2022 | Program & Schedule (pdf)

“Positive Behavior Strategies to Support Individuals with Down Syndrome Across the Lifespan”
Martha Walter, PhD, Psychologist,
Co-Director, Waisman Down Syndrome Clinic
Video | PowerPoint
“Behavioral and Cognitive Profiles in Down Syndrome Across the Life Course”
Sigan Hartley, PhD, Associate Professor, Human Ecology and Waisman Investigato
Video | PowerPoint
Community Panel

2021 | Program & Schedule (pdf)

“What’s New? Medical News for People with Down Syndrome and their Families”
Maria Stanley, MD, Director, Waisman Center Clinics
Kayla Kristensen, MS, CCC-SLP, Speech-Language Pathologist, Waisman Center Clinics
Kimberly Arndt, MD, Orthopedics and Rehabilitation, SMPH
“Down Syndrome Research Roundup”
Anita Bhattacharyya, PhD, Assistant Professor, Cell & Regenerative Biology | PowerPoint(pdf)
Bradley Christian, PhD, Professor, Medical Physics & Psychiatry | PowerPoint (pdf)
Sigan Hartley, PhD, Associate Professor, Human Ecology | PowerPoint (pdf)
Ruth Litovsky, PhD, Professor, Communication Sciences & Disorders | PowerPoint (pdf)
Community Panel

2020 | Program & Schedule (pdf)

Be INCLUDEd: Waisman BioLibrary and How You Can Join the Effort to Advance Knowledge
About Down Syndrome
Qiang Chang, PhD
Maria Stanley, MD
Video | PowerPoint (pdf)
Let’s Get Movin’! Expanding the “How To” in Your Toolbox to Make Activity and Participation
Meaningful and Feasible
Jaclyn Bender, OTR/L
Lindsey Stanek, DPT
Video | PowerPoint (pdf)
Resources: Balance, Core, Coordination (pdf) | Bike Resources (1) (pdf)
Transition Ready! Moving from Child to Adult Health Care
Julie Hajewski, MSN, ANP, APNP
Video | PowerPoint (pdf)

2019 | Flyer

Video – View the entire Day with the Experts: Down Syndrome 2019
Co-occurring Down Syndrome and Autism Spectrum Disorder: Risk Factors, Research, and Resources
Lindsay McCary, PhD
Video | PowerPoint (pdf)
Down Syndrome and Alzheimer’s Disease: Defining a Pathway Toward Prevention
Bradley Christian, PhD
Video | PowerPoint (pdf)
Take a Peek! Video Modeling and Video Instruction: A Power Tool for Learning Stuff!
Elizabeth Delsandro, MS, CCC-SLP
Video | PowerPoint (pdf)

2018 | Flyer

Maximizing Gains Toward Communication Goals: Putting the “Fun” in Functional Speech and Language Therapy for Individuals with Down Syndrome
By Kayla Kristensen, MS, CCC-SLP
Video | PowerPoint (pdf)
Alzheimer’s Disease: Aging and Down Syndrome
Sigan Hartley, PhD
Video | PowerPoint (pdf)
Enhancing Mealtime Participation for your Child with Down Syndrome
Sharon Gartland, OTD, OTR/L
Video | PowerPoint (pdf)

2017 | Flyer

Where is My Child? Safety at Home and When Traveling
Amy Lyle, MSSW and Julie Hajewski, APNP
Video | PowerPoint (pdf)
When Young Adults Turn 18: Considerations for Supported Decision
Elizabeth Hecht
Video | PowerPoint (pdf)
Eating to Make A Difference: Why Nutrition Matters for Individuals with Down Syndrome
Matthew Rasberry, RD, CNSC
Video | PowerPoint (pdf)
Supporting Youth with Down Syndrome During Puberty
Susan Heighway, MS, PNP-BC, APNP
Video | PowerPoint (pdf)


Good Things to Know Seminar | 1/26/17
Toilet Training: Setting You Up for Success (pdf)

2016 | Flyer

Navigating the Journey: The Transition to Adulthood
By Maria Stanley, MD, and Erin Thomson, LCSW
Video | Presentation Handouts (pdf)
Biomarkers for Alzheimer’s Disease in Down Syndrome
Brad Christian, PhD
Video | Presentation Handouts (pdf)
Enabling a Full Life: Participation at Home and in the Community
Sharon Gartland, OTD, OTR/L
Video | Presentation Handouts (pdf)