Beginning in 2010, this collaboration with the Down Syndrome Association of Wisconsin-South Central (DSAW) — formerly the Madison Area Down Syndrome Society (MADSS) — and GiGi’s Playhouse Madison, focuses on sharing knowledge about Down syndrome across the life course, from research using stem cells to the latest standards of care. A panel of experts made up of individuals with Down syndrome and their family members share insights and information.
Document and Video Archive
2024 | Program & Schedule (pdf)
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“Sleep Apnea in Children and Adolescents with Down Syndrome”
Camilla Matthews, MD, Associate Professor, Pediatric Pulmonology and Sleep Medicine, Department of Pediatrics
Video | PDF of PowerPoint |
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“Obstructive Sleep Apnea”
Tony Kille, MD, Associate Professor, Division of Otolaryngology, Department of Surgery
Mike Puricelli, MD, FACS, FAAP, Assistant Professor, Division of Otolaryngology, Department of Surgery
Video | PDF of Powerpoint |
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“Supporting Families Through the Use of CPAP”
Jaclyn Bender, MS, OTR/L, Occupational Therapist, Waisman Center Clinics
Jaime Bergh, PsyD, BCBA, Licensed Psychologist and Board-Certified Behavior Analyst, Waisman Center Clinics
Sherry Schultz, RN, MSN, CDDN, Director, Waisman Center Wellness Inclusion Nursing (WIN) Video | PDF of Powerpoint |
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Community Panel
Video |
2023 | Program & Schedule (pdf)
| “Lifestyle and Alzheimer’s Disease in Down Syndrome” Sigan Hartley, PhD, Professor, Human Ecology and Waisman Investigator Video | PowerPoint |
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| “The Future of Prevention and Treatment of Alzheimer’s Disease in Down Syndrome” Brad Christian, PhD, Professor, Medical Physics and Psychiatry, Associate Director, Waisman Center Video | PowerPoint |
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“The Road to Adulthood: A Brief Exploration of Youth to Adult Transition”
Julie Hajewski, MSN, A-NP, APNP, Wisconsin Youth Health Transition Initiative, Provider Education & Amy Lyle, MSSW, Senior Clinical Social Worker, Clinic Coordinator, Down Syndrome Clinic Video | PowerPoint |
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Community Panel
Video |
2022 | Program & Schedule (pdf)
| “Positive Behavior Strategies to Support Individuals with Down Syndrome Across the Lifespan” Martha Walter, PhD, Psychologist, Co-Director, Waisman Down Syndrome Clinic Video | PowerPoint |
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| “Behavioral and Cognitive Profiles in Down Syndrome Across the Life Course” Sigan Hartley, PhD, Associate Professor, Human Ecology and Waisman Investigator Video | PowerPoint |
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Community Panel
Video |
2021 | Program & Schedule (pdf)
| “What’s New? Medical News for People with Down Syndrome and their Families” Maria Stanley, MD, Director, Waisman Center Clinics Kayla Kristensen, MS, CCC-SLP, Speech-Language Pathologist, Waisman Center Clinics Kimberly Arndt, MD, Orthopedics and Rehabilitation, SMPH Video |
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| “Down Syndrome Research Roundup” Anita Bhattacharyya, PhD, Assistant Professor, Cell & Regenerative Biology | PowerPoint(pdf) Bradley Christian, PhD, Professor, Medical Physics & Psychiatry | PowerPoint (pdf) Sigan Hartley, PhD, Associate Professor, Human Ecology | PowerPoint (pdf) Ruth Litovsky, PhD, Professor, Communication Sciences & Disorders | PowerPoint (pdf) Video |
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Community Panel
Video |
2020 | Program & Schedule (pdf)
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Be INCLUDEd: Waisman BioLibrary and How You Can Join the Effort to Advance Knowledge
About Down Syndrome |
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| Let’s Get Movin’! Expanding the “How To” in Your Toolbox to Make Activity and Participation Meaningful and Feasible Jaclyn Bender, OTR/L Lindsey Stanek, DPT Video | PowerPoint (pdf) Resources: Balance, Core, Coordination (pdf) | Bike Resources (1) (pdf) |
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Transition Ready! Moving from Child to Adult Health Care
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2019 | Flyer
| Video – View the entire Day with the Experts: Down Syndrome 2019 |
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Co-occurring Down Syndrome and Autism Spectrum Disorder: Risk Factors, Research, and Resources
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| Down Syndrome and Alzheimer’s Disease: Defining a Pathway Toward Prevention Bradley Christian, PhD Video | PowerPoint (pdf) |
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Take a Peek! Video Modeling and Video Instruction: A Power Tool for Learning Stuff!
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2018 | Flyer
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Maximizing Gains Toward Communication Goals: Putting the “Fun” in Functional Speech and Language Therapy for Individuals with Down Syndrome
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| Alzheimer’s Disease: Aging and Down Syndrome Sigan Hartley, PhD Video | PowerPoint (pdf) |
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Enhancing Mealtime Participation for your Child with Down Syndrome
Sharon Gartland, OTD, OTR/L
Video | PowerPoint (pdf) |
2017 | Flyer
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Where is My Child? Safety at Home and When Traveling
Amy Lyle, MSSW and Julie Hajewski, APNP
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| When Young Adults Turn 18: Considerations for Supported Decision Making Elizabeth Hecht Video | PowerPoint (pdf) |
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| Eating to Make A Difference: Why Nutrition Matters for Individuals with Down Syndrome Matthew Rasberry, RD, CNSC Video | PowerPoint (pdf) |
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| Supporting Youth with Down Syndrome During Puberty Susan Heighway, MS, PNP-BC, APNP Video | PowerPoint (pdf) |
2017
| Good Things to Know Seminar | 1/26/17 | |
| Toilet Training: Setting You Up for Success (pdf) | |
2016 | Flyer
| Navigating the Journey: The Transition to Adulthood By Maria Stanley, MD, and Erin Thomson, LCSW Video | Presentation Handouts (pdf) |
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| Biomarkers for Alzheimer’s Disease in Down Syndrome Brad Christian, PhD Video | Presentation Handouts (pdf) |
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| Enabling a Full Life: Participation at Home and in the Community Sharon Gartland, OTD, OTR/L Video | Presentation Handouts (pdf) |
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