Down Syndrome Day with the Experts Archives
Beginning in 2010, this collaboration with the Down Syndrome Association of Wisconsin-South Central (DSAW) — formerly the Madison Area Down Syndrome Society (MADSS) — and GiGi’s Playhouse Madison, focuses on sharing knowledge about Down syndrome across the life course, from research using stem cells to the latest standards of care. A panel of experts made up of individuals with Down syndrome and their family members share insights and information.
Document and Video Archive
2026
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“Small Bites: Nutrition Needs and Sensory Preferences for People with Down Syndrome”
Maria Stanley, MD, Developmental Behavioral Pediatrician, Director, Waisman Center Clinics, Mary Marcus, MS, RDN,CSP, CD, and Jaclyn Bender, MS, OTR/L, Waisman Center Clinics
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“Cardiometabolic Health in Individuals with Down Syndrome”
Sigan Hartley, PhD, 100 Women Distinguished Chair in Human Ecology, Professor of Human Development and Family Studies, School of Human Ecology, Waisman Center Investigator
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“Moving More Together: Exercise for Children With Down Syndrome and Their Parents”
Luis Columna, PhD, Professor, Department of Kinesiology, Waisman Affiliate
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Community Panel
Video |
2025 | Program & Schedule (pdf)
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Building Research Collaborations to Understand Co-Occurring Medical Conditions in Children and Adults with Down Syndrome
Maria Stanley, MD, Developmental Behavioral Pediatrician, Director, Waisman Center Clinics Video | PDF of PowerPoint | |
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Language Development in Young Children with Down Syndrome
Audra Sterling, PhD, Professor, Communication Sciences and Disorders Video | PDF of Powerpoint | |
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Associations between Hearing and Cognition in Individuals with Down Syndrome
Ruth Litovsky, PhD, Oros Family Chair & Professor, Communication Sciences and Disorders, and Surgery, Division of Otolaryngology Video | PDF of Powerpoint | |
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Community Panel
Video |
2024 | Program & Schedule (pdf)
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“Sleep Apnea in Children and Adolescents with Down Syndrome”
Camilla Matthews, MD, Associate Professor, Pediatric Pulmonology and Sleep Medicine, Department of Pediatrics
Video | PDF of PowerPoint | |
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“Obstructive Sleep Apnea”
Tony Kille, MD, Associate Professor, Division of Otolaryngology, Department of Surgery
Mike Puricelli, MD, FACS, FAAP, Assistant Professor, Division of Otolaryngology, Department of Surgery
Video | PDF of Powerpoint | |
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“Supporting Families Through the Use of CPAP”
Jaclyn Bender, MS, OTR/L, Occupational Therapist, Waisman Center Clinics
Jaime Bergh, PsyD, BCBA, Licensed Psychologist and Board-Certified Behavior Analyst, Waisman Center Clinics
Sherry Schultz, RN, MSN, CDDN, Director, Waisman Center Wellness Inclusion Nursing (WIN) Video | PDF of Powerpoint | |
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Community Panel
Video |
2023 | Program & Schedule (pdf)
| “Lifestyle and Alzheimer’s Disease in Down Syndrome” Sigan Hartley, PhD, Professor, Human Ecology and Waisman Investigator Video | PowerPoint | |
| “The Future of Prevention and Treatment of Alzheimer’s Disease in Down Syndrome” Brad Christian, PhD, Professor, Medical Physics and Psychiatry, Associate Director, Waisman Center Video | PowerPoint | |
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“The Road to Adulthood: A Brief Exploration of Youth to Adult Transition”
Julie Hajewski, MSN, A-NP, APNP, Wisconsin Youth Health Transition Initiative, Provider Education & Amy Lyle, MSSW, Senior Clinical Social Worker, Clinic Coordinator, Down Syndrome Clinic Video | PowerPoint | |
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Community Panel
Video |
2022 | Program & Schedule (pdf)
| “Positive Behavior Strategies to Support Individuals with Down Syndrome Across the Lifespan” Martha Walter, PhD, Psychologist, Co-Director, Waisman Down Syndrome Clinic Video | PowerPoint | |
| “Behavioral and Cognitive Profiles in Down Syndrome Across the Life Course” Sigan Hartley, PhD, Associate Professor, Human Ecology and Waisman Investigator Video | PowerPoint | |
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Community Panel
Video |
2021 | Program & Schedule (pdf)
| “What’s New? Medical News for People with Down Syndrome and their Families” Maria Stanley, MD, Director, Waisman Center Clinics Kayla Kristensen, MS, CCC-SLP, Speech-Language Pathologist, Waisman Center Clinics Kimberly Arndt, MD, Orthopedics and Rehabilitation, SMPH Video | |
| “Down Syndrome Research Roundup” Anita Bhattacharyya, PhD, Assistant Professor, Cell & Regenerative Biology | PowerPoint(pdf) Bradley Christian, PhD, Professor, Medical Physics & Psychiatry | PowerPoint (pdf) Sigan Hartley, PhD, Associate Professor, Human Ecology | PowerPoint (pdf) Ruth Litovsky, PhD, Professor, Communication Sciences & Disorders | PowerPoint (pdf) Video | |
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Community Panel
Video |
2020 | Program & Schedule (pdf)
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Be INCLUDEd: Waisman BioLibrary and How You Can Join the Effort to Advance Knowledge
About Down Syndrome | |
| Let’s Get Movin’! Expanding the “How To” in Your Toolbox to Make Activity and Participation Meaningful and Feasible Jaclyn Bender, OTR/L Lindsey Stanek, DPT Video | PowerPoint (pdf) Resources: Balance, Core, Coordination (pdf) | Bike Resources (1) (pdf) | |
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Transition Ready! Moving from Child to Adult Health Care
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2019 | Flyer
| Video – View the entire Day with the Experts: Down Syndrome 2019 | |
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Co-occurring Down Syndrome and Autism Spectrum Disorder: Risk Factors, Research, and Resources
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| Down Syndrome and Alzheimer’s Disease: Defining a Pathway Toward Prevention Bradley Christian, PhD Video | PowerPoint (pdf) | |
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Take a Peek! Video Modeling and Video Instruction: A Power Tool for Learning Stuff!
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2018 | Flyer
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Maximizing Gains Toward Communication Goals: Putting the “Fun” in Functional Speech and Language Therapy for Individuals with Down Syndrome
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| Alzheimer’s Disease: Aging and Down Syndrome Sigan Hartley, PhD Video | PowerPoint (pdf) | |
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Enhancing Mealtime Participation for your Child with Down Syndrome
Sharon Gartland, OTD, OTR/L
Video | PowerPoint (pdf) |
2017 | Flyer
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Where is My Child? Safety at Home and When Traveling
Amy Lyle, MSSW and Julie Hajewski, APNP
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| When Young Adults Turn 18: Considerations for Supported Decision Making Elizabeth Hecht Video | PowerPoint (pdf) | |
| Eating to Make A Difference: Why Nutrition Matters for Individuals with Down Syndrome Matthew Rasberry, RD, CNSC Video | PowerPoint (pdf) | |
| Supporting Youth with Down Syndrome During Puberty Susan Heighway, MS, PNP-BC, APNP Video | PowerPoint (pdf) |
2017
| Good Things to Know Seminar | 1/26/17 | |
| Toilet Training: Setting You Up for Success (pdf) | |
2016 | Flyer
| Navigating the Journey: The Transition to Adulthood By Maria Stanley, MD, and Erin Thomson, LCSW Video | Presentation Handouts (pdf) | |
| Biomarkers for Alzheimer’s Disease in Down Syndrome Brad Christian, PhD Video | Presentation Handouts (pdf) | |
| Enabling a Full Life: Participation at Home and in the Community Sharon Gartland, OTD, OTR/L Video | Presentation Handouts (pdf) | |