Down Syndrome Day with the Experts

Beginning in 2010, this new collaboration with the Madison Area Down Syndrome Society (MADSS) focuses on sharing knowledge about Down syndrome across the life course, from research using stem cells to the latest standards of care. A panel of experts made up of individuals with Down syndrome and their family members share insights and information.

Document and Video Archive

2020 | Program & Schedule (pdf)

Be INCLUDEd: Waisman BioLibrary and How You Can Join the Effort to Advance Knowledge
About Down Syndrome
Qiang Chang, PhD
Maria Stanley, MD
Video | PowerPoint (pdf)
Let’s Get Movin’! Expanding the “How To” in Your Toolbox to Make Activity and Participation
Meaningful and Feasible
Jaclyn Bender, OTR/L
Lindsey Stanek, DPT
Video | PowerPoint (pdf)
Resources: Balance, Core, Coordination (pdf) | Bike Resources (1) (pdf)
Transition Ready! Moving from Child to Adult Health Care
Julie Hajewski, MSN, ANP, APNP
Video | PowerPoint (pdf)

2019 | Flyer

Video – View the entire Day with the Experts: Down Syndrome 2019
Co-occurring Down Syndrome and Autism Spectrum Disorder: Risk Factors, Research, and Resources
Lindsay McCary, PhD
Video | PowerPoint (pdf)
Down Syndrome and Alzheimer’s Disease: Defining a Pathway Toward Prevention
Bradley Christian, PhD
Video | PowerPoint (pdf)
Take a Peek! Video Modeling and Video Instruction: A Power Tool for Learning Stuff!
Elizabeth Delsandro, MS, CCC-SLP
Video | PowerPoint (pdf)

2018 | Flyer

Maximizing Gains Toward Communication Goals: Putting the “Fun” in Functional Speech and Language Therapy for Individuals with Down Syndrome
By Kayla Kristensen, MS, CCC-SLP
Video | PowerPoint (pdf)
Alzheimer’s Disease: Aging and Down Syndrome
Sigan Hartley, PhD
Video | PowerPoint (pdf)
Enhancing Mealtime Participation for your Child with Down Syndrome
Sharon Gartland, OTD, OTR/L
Video | PowerPoint (pdf)

2017 | Flyer

Where is My Child? Safety at Home and When Traveling
Amy Lyle, MSSW and Julie Hajewski, APNP
Video | PowerPoint (pdf)
When Young Adults Turn 18: Considerations for Supported Decision
Making
Elizabeth Hecht
Video | PowerPoint (pdf)
Eating to Make A Difference: Why Nutrition Matters for Individuals with Down Syndrome
Matthew Rasberry, RD, CNSC
Video | PowerPoint (pdf)
Supporting Youth with Down Syndrome During Puberty
Susan Heighway, MS, PNP-BC, APNP
Video | PowerPoint (pdf)

2017

Good Things to Know Seminar | 1/26/17
Toilet Training: Setting You Up for Success (pdf)

2016 | Flyer

Navigating the Journey: The Transition to Adulthood
By Maria Stanley, MD, and Erin Thomson, LCSW
Video | Presentation Handouts (pdf)
Biomarkers for Alzheimer’s Disease in Down Syndrome
Brad Christian, PhD
Video | Presentation Handouts (pdf)
Enabling a Full Life: Participation at Home and in the Community
Sharon Gartland, OTD, OTR/L
Video | Presentation Handouts (pdf)