University of Wisconsin–Madison

Category: Inclusion

New book shares the experiences of individuals with disabilities through the COVID-19 pandemic using photos

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The Pandemic Cancelled It, and They Never Brought It Back takes readers into the daily lives of individuals with intellectual and developmental disabilities during the COVID‑19 pandemic, using their own photographs and words to reveal moments of loss, adaptation, resilience, and connection. Created by researchers at the Waisman Center, the book offers an intimate portrait of a community whose experiences are too often overlooked.

Understanding why individuals with disabilities continue to be left out of health research

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Individuals with disabilities face significant health disparities, yet remain underrepresented in health research. There is substantial evidence that individuals with intellectual and developmental disabilities are systematically excluded from health research, even when it involves a condition that disproportionately impacts them.

Advising research through the lens of lived experience: How individuals with disabilities and their families are shaping research

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NOTE: Each individual interviewed for this story stated their preference between person-first or identity-first language. The language used reflects the preference of each person. Researchers interviewed use identity-first language in alignment with the preferences of many of those in the autistic community. Who is considered an expert in autism? Or cerebral palsy? Or Down syndrome? …