University of Wisconsin–Madison

Category: Neurodevelopmental Disabilities

A springboard for scientific independence: Inside Waisman’s T32 Postdoctoral Training Program

At a Glance: Postdoctoral fellowships occupy an unusual space between being a graduate student and becoming an independent scholar. The postdoc stage is marked by a focus on refining research skills, expanding their knowledge-base, and developing key professional development skills (e.g., grant writing) needed to be an independent scientist. It can feel at times, like …

New book shares the experiences of individuals with disabilities through the COVID-19 pandemic using photos

The Pandemic Cancelled It, and They Never Brought It Back takes readers into the daily lives of individuals with intellectual and developmental disabilities during the COVID‑19 pandemic, using their own photographs and words to reveal moments of loss, adaptation, resilience, and connection. Created by researchers at the Waisman Center, the book offers an intimate portrait of a community whose experiences are too often overlooked.

Waisman Center to pilot Adult Autism Program this summer

This summer, the Waisman Center’s University Center for Excellence in Developmental Disabilities (UCEDD) will launch the Adult Autism Program, with services focused on mental health, life skills, and social connections for supporting quality of life in autistic adults and their families.

The Waisman Center hosts a successful first Day with the Experts on Congenital Heart Defects

On the first day of Congenital Heart Defects (CHD) Awareness Week, Waisman Center and UW Health Kids experts gathered to share their knowledge on the neurodevelopmental outcomes of congenital heart surgery with the community.

Understanding why individuals with disabilities continue to be left out of health research

Individuals with disabilities face significant health disparities, yet remain underrepresented in health research. There is substantial evidence that individuals with intellectual and developmental disabilities are systematically excluded from health research, even when it involves a condition that disproportionately impacts them.

New research reinforces the link between a cellular quality control system and rare forms of autism

Just like a car factory relies on inspectors to ensure that every vehicle is built correctly, cells depend on internal quality control systems to keep proteins functioning as they should. New research from Waisman Center investigator Luigi Puglielli, MD, PhD, professor of medicine at the University of Wisconsin-Madison, reveals that disruptions in one such system—the endoplasmic reticulum’s acetylation pathway—can lead to rare forms of autism and progeria, offering fresh insights into the cellular roots of these complex conditions.

Atypical infant movements tied to cerebral palsy may signal differences in brain connectivity

Brain connectivity differences linked to atypical infant movements may aid the early prediction of cerebral palsy development after a perinatal brain injury, a new Waisman Center study shows.

Child’s rare condition diagnosed after 14 years of searching

Imagine how it would feel to have a child born seemingly healthy, but then he struggles to grow, walk, learn or talk – and no one can figure out why.

Let’s get moving: physical activity can be challenging but highly beneficial for individuals with developmental disabilities, a few modifications may help

Español By Charlene N. Rivera-Bonet | Waisman Science Writer The researchers interviewed for this story use identity-first language in alignment with the preferences of many of those in the autistic community. This story reflects that preference. A non-exhaustive list of accessible options for physical activities in the Madison area are provided at the end. They say …

Physician, educator, mentor: After three decades at Waisman, Wargowski Retires

Wargowski, after three decades of providing exceptional patient care to hundreds of patients in the Medical Genetics Clinics at Waisman, is retiring at the end of June.