More than 400,000 individuals in the United States have Down syndrome, or trisomy 21–a chromosomal condition caused by an extra 21st chromosome. Down syndrome is the most commonly occurring chromosomal condition. Approximately one in every 733 babies is born with Down syndrome each year.
Down Syndrome Clinic
The Waisman Center provides comprehensive clinical care and support for children with disabilities and their families.
Training
Since 2010, Day with the Experts: Down Syndrome has focused on sharing knowledge about Down syndrome across the life course, from research using stem cells to the latest standards of care.
BioLibrary
The Waisman BioLibrary is a new Waisman Center initiative. The first study from this project is related to Down syndrome. Visit to learn more.
Waisman Down Syndrome News
Stem cell project to create new model to study brain development and Down syndrome
Waisman Center researchers are creating a new approach to study how changes to brain development in the womb result in intellectual disability in people with Down syndrome.
New NIH-funded initiative will examine Alzheimer’s disease in people with Down syndrome
A team of researchers at the University of Wisconsin–Madison is part of a new multi-institution effort to better understand Alzheimer’s disease in adults with Down syndrome. Adults with Down syndrome are at high risk for …
Spurred by COVID-19 pandemic, telehealth becomes mainstream at Madison clinics, hospitals
“It was awesome. It saves us from having to take time off work and having to travel,” said Nicole Gantz, whose 8-year-old son Joshua has Down syndrome and an attention disorder. Nicole and Joshua visited with Maria Stanley, a …
Mancheski Foundation Funds Next-Gen Research on Down Syndrome and Alzheimer’s
A gift from the Mancheski Foundation continues to provide integral support to doctoral student Matthew Zammit as he furthers his research on the progression of Alzheimer’s disease in individuals with Down syndrome. Zammit is beginning …
In Wisconsin, 3 in 5 people with Down syndrome diagnosed with dementia by age 55
Not so many years ago, people with Down syndrome rarely survived to middle age. Many died young due to heart problems associated with the congenital condition. Today, advances in treatment have allowed them to live longer, healthier lives.
New funding for Down syndrome research and biobank
The Waisman Center is one of 25 recipients to receive funding through a National Institutes of Health (NIH) grant that focuses on advancing research on Down syndrome. The grant is part of the NIH Investigation …
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Studies Currently Recruiting
Our Partners
The Waisman Center works in collaboration with community partners to serve the Down Syndrome community through outreach and training.
Resources & Services
Research Participation | 800.965.9205; 608.263.5192; registry@waisman.wisc.edu; Participate in Research
The Waisman Center’s Research Registry links individuals and families to research projects at the Waisman Center. The Waisman Center maintains a confidential registry of families and individuals who would like to be contacted about upcoming research projects. Enrollment in the Research Registry does not obligate an individual or family to participate in any study.
Community Outreach for Children with Challenging Behaviors | 608.265.9438; cow.waisman.wisc.edu/ties
Community Training, Intervention and Evaluations Services (TIES) is an outreach program for children and adults with developmental disabilities who present various challenging behaviors, including withdrawal, aggression and self-injury. The mission of Community TIES is to address behavioral, psychological, and emotional needs using therapeutic approaches that insure continued participation in the community. TIES provides counseling, crisis response, psychiatric consultation, parent education and support, and training for personnel and program consultation in local human service agencies. Directed by Josh Lapin, MSW, and funded by Dane County, this program maintains an active caseload of approximately 250 children and adults in Dane County.
Well Badger Resource Center | 800-642-7837; text: (608) 360-9328; help@wellbadger.org; https://www.wellbadger.org/
When you have questions about health and social services, figuring out where to go when you need help can be overwhelming. We’re here to make it easier. Well Badger Resource Center is your one-stop connection to community, social, health, and government programs — a place to find what you need, when you need it.