Shortly after Raegan was born to Scott and his wife Carrie, she was diagnosed with phenylketonuria, or PKU — a rare metabolic disorder that prevents her from properly metabolizing phenylalanine, a common amino acid that exists in most proteins. PKU is a rare disorder that affects approximately 16,000 people in the U.S. It is one of 47 disorders for which newborns in Wisconsin are screened. If left untreated, it can cause intellectual disabilities, seizures, among other health-related issues.
Outreach
Navigating a Brighter Future for Youth with Disabilities and Their Families
Helping youth with disabilities pursue post-high school employment and education opportunities can mean piecing together services from a broad range of agencies and organizations. This can be a challenge for anyone, but for low-income families, …
Major Lifetime Gift Establishes Scholarly Society
It’s been seven years since Dick Morse, MD, a UW alum and retired child psychiatrist, and his lifelong partner, Lawrence M. Connor, MSW, a retired social worker, established an $11 million (now worth an estimated $17 million) planned estate gift for the Morse Society — a multidisciplinary graduate fellowship program at the Waisman Center.
Waisman Center 2019: Year-in-Review
2019 Year-in-Review
Waisman Whirl 2019 Results
WAISMAN WHIRL Madison, WI 10/06/2019 ********** OVERALL 5K RUN RESULTS ********** Place Bib Name Sex City Div/Tot Div Finish Pace ===== ===== ======================= === ================ ======== ========== ======= ===== 1 2510 Kyle Fisher M 1/4 …
‘Anything can kill her’: Area family credits newborn screening with saving baby’s life
Maddie’s parents know that, although they wish to take her home, the hospital is still the safest place for her. Born in January, Maddie was diagnosed with severe combined immunodeficiency, or SCID, a rare condition that makes her highly susceptible to infection.
Waisman Center 2018: Year in Review
We’re delighted to share a video highlighting many of the strides we have made over the past year. Your generous and thoughtful contributions help us continue to pioneer research and expand clinical services that benefit …
Annual Poster Fair Showcases Research, Collaboration
The Waisman Center hosted their annual poster fair on Thursday, Dec. 6. The well-attended event featured nearly fifty posters highlighting the interdisciplinary research of students, graduates and investigators working at the Waisman Center. This event …
New gift to support research and training
A new estate gift will help support research and expand undergraduate and graduate student training in the area of intellectual and developmental disabilities at the Waisman Center. This significant gift – more than $1 million …
Giizhik, young artist with autism, featured on WPT’s ‘Wisconsin Life”
Wisconsin Public Television’s Wisconsin Life recently featured Klawiter, a young artist with autism, who for the past decade has been designing and selling holiday cards across Sawyer County, raising awareness for autism and more than …