Gov. Evers proclaims March Developmental Disabilities Awareness

In honor of Developmental Disabilities Awareness month during March, Wisconsin Governor Tony Evers issued a proclamation raising awareness and highlighting the many contributions of Wisconsinites with disabilities. The proclamation also underscores the barriers and challenges …

UCEDD project to address health equity for Latino families of children with developmental disabilities

Padres e Hijos en Acción and the Waisman Center UCEDD announced a $330,000 grant to improve local health care responsiveness to the needs of Latino families of children with developmental disabilities and other special health care needs in Dane County.

The ECHO Effect

Project ECHO (the mantra for which is “All teach, all learn”) uses video-conferencing technology to provide education and case consultation on best practice clinical services, training, and resources for individuals with specific healthcare needs that are difficult to meet locally. The Waisman Center ECHO platform will serve as a diagnostic and treatment training hub to share the center’s expertise on intellectual and developmental disabilities, such as autism, Down syndrome, and cerebral palsy, throughout the state and beyond.

Thoughts of Gratitude: Scott Kornstedt

Shortly after Raegan was born to Scott and his wife Carrie, she was diagnosed with phenylketonuria, or PKU — a rare metabolic disorder that prevents her from properly metabolizing phenylalanine, a common amino acid that exists in most proteins. PKU is a rare disorder that affects approximately 16,000 people in the U.S. It is one of 47 disorders for which newborns in Wisconsin are screened. If left untreated, it can cause intellectual disabilities, seizures, among other health-related issues.